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Isabella Rebecca Parker
born January 30th, 2009 - 2:55pm
5 lb 7 oz and 18.5 inches (est)
Bella has Osteogenesis Imperfecta Type 3. This brittle bone disease affects less than 50k people in the US which makes it very rare. There are many types of OI, but type 2 and 3 are the most debilitating ones.
Click "Read my Story" to hear more...
Hello everyone, my name is Isabella Parker and I have OI. I am 2.5 years old now. I have had 25 fractures since birth. My favorite things are dancing, Dora, Elmo, and playing with my brothers. I just got a new wheelchair and I am able to get around now by myself. I am trying to stand now and I am weight bearing on my legs.
I still get my Pamidronate infusions every 8 weeks at Lebonheur they are now one day treatments instead of three days. I also go to Omaha Children's Hospital every year to visit their OI clinic and visit oi specialist. I will be getting rods for my legs soon and hopefully they will allow me to walk.
I understand that alot of people are praying for my me and I want all you you to know how much I appreciate it. Without all of you, I may not have had much of a chance. There is no power greater than prayer.
Watch for updates from them in my journal as things seem to change from day to day.