My Story

Isabella Rebecca Parker
born January 30th, 2009 - 2:55pm
5 lb 7 oz and 18.5 inches (est)

Bella has Osteogenesis Imperfecta Type 3. This brittle bone disease affects less than 50k people in the US which makes it very rare. There are many types of OI, but type 2 and 3 are the most debilitating ones.

Click "Read my Story" to hear more...

Hello everyone, my name is Isabella Parker and I have OI. I am 2.5 years old now. I have had 25 fractures since birth. My favorite things are dancing, Dora, Elmo, and playing with my brothers. I just got a new wheelchair and I am able to get around now by myself. I am trying to stand now and I am weight bearing on my legs. 

I still get my Pamidronate infusions every 8 weeks at Lebonheur they are now one day treatments instead of three days. I also go to Omaha Children's Hospital every year to visit their OI clinic and visit oi specialist. I will be getting rods for my legs soon and hopefully they will allow me to walk.

I understand that alot of people are praying for my me and I want all you you to know how much I appreciate it. Without all of you, I may not have had much of a chance. There is no power greater than prayer.

Watch for updates from them in my journal as things seem to change from day to day.


William Parker added a new photo.

William Parker added a new photo.

William Parker added a new photo.

William Parker added a new photo.

Terry Kirkpatrick signed Isabella's Guestbook.

Hi Bella. My name is Terry. I work at a high school Print Shop. You don't know me, but I know your Dad. He is a great Dad and very smart. He trains us on our printing ... Read more

Susan James signed Isabella's Guestbook.

What a beautiful baby and story. I will pray for your family and Bella. GOD makes no mistakes, she is an inspiration and you both seem to be the perfect parents to have ... Read more

Ashley Moss signed Isabella's Guestbook.

Hey!  I wanted to ask you to give me a call when you get a chance.  I have a patient here at LeBonheur that would like to donate some medical equipment to Bella.  I can ... Read more

William Parker posted a new journal entry.

Why is it that we question what happens to us in life? Do we feel like we have some sort of control? Can we alter the course of our future or is it already set? Depending ... Read more

Hilary Alexander signed Isabella's Guestbook.

My Daughter in law and 3 of my grandchildren have OI, so l know something of the challenges facing Bella and her family. lt's good to see her progress after the infusions. ... Read more

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