Isabella Rebecca Parker born January 30th, 2009 - 2:55pm 5 lb 7 oz and 18.5 inches (est)
Bella has Osteogenesis Imperfecta Type 3. This brittle bone disease affects less than 50k people in the US which makes it very rare. There are many types of OI, but type 2 and 3 are the most debilitating ones.
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Hello everyone, my name is Isabella Parker and I have OI. I am 2.5 years old now. I have had 25 fractures since birth. My favorite things are dancing, Dora, Elmo, and playing with my brothers. I just got a new wheelchair and I am able to get around now by myself. I am trying to stand now and I am weight bearing on my legs.
I still get my Pamidronate infusions every 8 weeks at Lebonheur they are now one day treatments instead of three days. I also go to Omaha Children's Hospital every year to visit their OI clinic and visit oi specialist. I will be getting rods for my legs soon and hopefully they will allow me to walk.
I understand that alot of people are praying for my me and I want all you you to know how much I appreciate it. Without all of you, I may not have had much of a chance. There is no power greater than prayer.
Watch for updates from them in my journal as things seem to change from day to day.
Why is it that we question what happens to us in life? Do we feel like we have some sort of control? Can we alter the course of our future or is it already set? Depending on how analytical a person is and what his/her beliefs are, these questions may or may not affect a persons daily activity. Years ago, I was one who questioned everything. Why did this happen? How could I have changed it? But now these questions hardly cross my mind. I realized that everything does seem to happen for a reason, and we are to make the best of what we are dealt. One thing is for sure, life will always throw you a curve, the questions is...will you swing at it?
have so much wonderful information to share with everyone today and I am so
happy to be delivering this to you.
First, Bella’s Make A Wish trip was incredible. Everything
was tailored towards kids the whole time, even down to the living facility.
When we arrived at the airport, a Give Kids The World representative greeted
us. He explained that we needed to relax and let the staff take care of us, and
that is just what they did. He also explained that kids rule at their facility
and they expected us to let the kids do what they wanted, rather it be jump in
a flower bed or eat ice cream at 7 am, didn’t matter, they wanted the kids to
rule! Interesting enough, the Vila we had even had the master bedroom as the
kids room as well as the large bathroom, putting me and Mindy in the back room.
And that was just the beginning, they presented us with cards to get in all the
parks and go right to the front of the lines on everything at any time. This
made everything so much easier. The crowds were crazy, but we were able to move
slowly through the park and still get on the rides without having to rush at
all. Bella ate with Cinderella and many other princesses which was most likely
the highlight of the trip for her. We are working on compiling the 20 gig of
pictures and videos and will share that as soon as we are done.
Bella’s lights ran through the end of December, and we would
like to personally thank the Valenzuela and Coopwood families or making Bella
part of their light show again last year. We hope that everyone that came out
enjoyed the dancing lights.
Isabella celebrated another birthday at the end of January.
Our little princess is now 4, and boy is the personality really starting to
come out. She wants so bad to do everything for herself, and a lot of things
she is finding ways to do, other things she is still working on. Bella is starting
to get up on her knees, which is a huge milestone for her and a stepping-stone
towards crawling or walking. For the time being, she scoots around like she
always has. Pre-School is in full swing and Bella really loves it. In fact,
have never seen any child as excited about school as Bella! It’s quite
entertaining to see how she acts at school; singing and playing with the other
kids, and enjoying lunchtime at the table.
And now for some more exciting news (as if the above wasn’t
enough), someone has started an Internet campaign for Bella through a site
called Indiegogo. This campaign was started specifically to raise money and
assist with some large medical expenses that may be ahead, as well as some
quality of life purchases for Bella. The way the campaign works is through
sharing via Social Media, Email, or Word of Mouth. Please feel free to copy and
share this link with everyone you know, and please feel free to add your own
verbiage to the email.We only have 60
days to raise as much money as we can and we are off to a great start!