Bella and I spent most of our day yesterday at or in the vicinity of Children's Hospital as she had multiple appointments in what we will call a little 'tune up' before school
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Bella's dental appointment this morning went much more smoothly than the endocrine fiasco of yesterday thanks in part to a wondrous little intervention called nitrous oxide. D
After having the time of her life and feeling like a princess yesterday at the very successful More Birthdays for Bella fundraiser for Fanconi Anemia Research Fund, it was bac
Please share this with your friends and family! Anybody in the U.S. can help support the Fanconi Anemia Research Fund and More Birthdays for Bella with a high bid on this fabu
Today is Bella's birthday! Seems like just yesterday that our world was turned upside down by the arrival of this incredible young lady who has inspired us in ways we never im
((sigh of relief)) After holding my breath and waiting for Ben to call with the results, my phone rang around 5 (the appt. was at 4:30). The results are great! The lesion appe
I'm headed out to pick up Bella from school and meet Ben so he can take her to an appointment with her dentist. I wish I could go to the appointment, but our kids have us outn
Bella is still not able to tolerate her tube feedings and we are going on day 5 now. It just runs right through her as she sleeps at night, not bothering to stop in her intest
So what happens when mom, dad, and all 3 kids are laid up in bed with a virus for 2 days, unable to do anything but breathe, puke, and sleep? I'll tell you what ~ a house that
I thought winter and the plethora of viruses that accompany it would be long behind us by mid April, but apparently I was wrong....very, very wrong. Bella woke up sick on Satu