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My Story

Isabella is an exceptional 7 year old who will capture your heart the moment you meet her. She was born with multiple birth defects and medical conditions. After 6 years of trying to piece together the puzzle that is Isabella, she was diagnosed with Fanconi Anemia. It is a rare genetic disease that will cause her bone marrow to fail and will require her to have a bone marrow transplant. Additionally, FA patients like Bella are likely to develop blood cancers such as leukemia as well as solid tumor cancers at an exceptionally young age. Despite it all, Bella is an incredible little girl and her fighting spirit will show you that miracles really do exist!



Isabella Claire Griggs was born on April 21, 2004. She weighed just 4 lbs. Her medical diagnosis include esophageal atresia, PDA, ASD, and VSD heart defects, epilepsy, mild hearing loss bilaterally, Celiac disease, and severe oral aversion with g-tube dependence. She has endured 8 major surgeries, including open heart surgery, as well as multiple medical procedures. She has spent over 200 days in the hospital during her lifetime and she has over 20 scars on her tiny body to attest to her struggle.

Despite it all, Isabella is a dazzling, energetic, and feisty little girl. She has endured more pain, suffering, and surgery than most adults do in a lifetime. Because of her extensive health history, Isabella never learned how to eat, and received all nutrition through her g-tube for most of her life.

This CaringBridge website will be used to inform the many friends, both old and new, family, doctors, teachers, and other wonderful people about Isabella.

 

Feed

Stephanie Griggs posted a new journal entry, "We. Are. Sick.".

I thought winter and the plethora of viruses that accompany it would be long behind us by mid April, but apparently I was wrong....very, very wrong. Bella woke up sick ... Read more

Stephanie Griggs posted a new journal entry, "Spring Break".

Now I remember the other reason (besides not having to miss school) that we try to schedule Bella's bone marrow aspiration during her spring break. After resuming school ... Read more

Stephanie Griggs posted a new journal entry, "Bone Marrow Aspiration Results".

Bone marrow biopsy results are in. No abnormal cells. No precancerous cells; red, white and platelets all being produced. Unfrtunately, during the aspiration, the bone ... Read more

Stephanie Griggs posted a new journal entry, "Home Sweet Home".

We're finally home and snuggled into our beds after what seems like the longest day ever. Hours and hours of travel combined with mental and emotional exhaustion will do ... Read more

Stephanie Griggs posted a new journal entry.

So apparently Bella has a good tolerance for propofol. Too bad Michael Jackson didn't get that gene. (awww...that was a bad joke. Sorry)  We were wondering why the bone ... Read more

Stephanie Griggs posted a new journal entry, "It's that time of year again....".

I'm so embarassed.....I just looked at hthis page for the first time in....well, too darn long!! The theming for the page is still CHRISTMAS! What is wrong with me! How ... Read more

Stephanie Griggs posted a new journal entry, "This Girl is a Fighter!".

No news has/had truly been good news. As things in the Griggs household and Bella’s health in general have settled into a normal pattern (normal for us anyway) over the ... Read more

Stephanie Griggs posted a new journal entry, "Happy Birthday Bella!".

On Saturday, April 21st, we celebrated Bella's birthday with a trip to Stonefire Pizza for gluten free pizza and fun with some friends followed by a Milwaukee Brewer's ... Read more

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