My Story

Isabella is an exceptional 7 year old who will capture your heart the moment you meet her. She was born with multiple birth defects and medical conditions. After 6 years of trying to piece together the puzzle that is Isabella, she was diagnosed with Fanconi Anemia. It is a rare genetic disease that will cause her bone marrow to fail and will require her to have a bone marrow transplant. Additionally, FA patients like Bella are likely to develop blood cancers such as leukemia as well as solid tumor cancers at an exceptionally young age. Despite it all, Bella is an incredible little girl and her fighting spirit will show you that miracles really do exist!



Isabella Claire Griggs was born on April 21, 2004. She weighed just 4 lbs. Her medical diagnosis include esophageal atresia, PDA, ASD, and VSD heart defects, epilepsy, mild hearing loss bilaterally, Celiac disease, and severe oral aversion with g-tube dependence. She has endured 8 major surgeries, including open heart surgery, as well as multiple medical procedures. She has spent over 200 days in the hospital during her lifetime and she has over 20 scars on her tiny body to attest to her struggle.

Despite it all, Isabella is a dazzling, energetic, and feisty little girl. She has endured more pain, suffering, and surgery than most adults do in a lifetime. Because of her extensive health history, Isabella never learned how to eat, and received all nutrition through her g-tube for most of her life.

This CaringBridge website will be used to inform the many friends, both old and new, family, doctors, teachers, and other wonderful people about Isabella.

 

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Stephanie Griggs posted a new journal entry, "Pre-school Tune Up".

Bella and I spent most of our day yesterday at or in the vicinity of Children's Hospital as she had multiple appointments in what we will call a little 'tune up' before ... Read more

Wendy Delzell signed Isabella's Guestbook.

I just wanted to wish all of you a happy Thanksgiving! I'm sure Bella will chew all of that scrumptious food well. Have a wonderful holiday season. Read more

Kayla Pfab signed Isabella's Guestbook.

I'm glad the appointments went so smoothly. I hope that you guys can enjoy your remaining days of summer, I know I am trying too (although I still have a few more ... Read more

Stephanie Griggs posted a new journal entry, "Another Day, Another Doctor".

Bella's dental appointment this morning went much more smoothly than the endocrine fiasco of yesterday thanks in part to a wondrous little intervention called nitrous ... Read more

Stephanie Griggs posted a new journal entry, "Rough Day...".

After having the time of her life and feeling like a princess yesterday at the very successful More Birthdays for Bella fundraiser for Fanconi Anemia Research Fund, it was ... Read more

Stephanie Griggs posted a new journal entry, "Happy Birthday Bella!".

Today is Bella's birthday! Seems like just yesterday that our world was turned upside down by the arrival of this incredible young lady who has inspired us in ways we ... Read more

Stephanie Griggs posted a new journal entry, "Good news!".

((sigh of relief)) After holding my breath and waiting for Ben to call with the results, my phone rang around 5 (the appt. was at 4:30). The results are great! The lesion ... Read more

Stephanie Griggs posted a new journal entry, "Hopefully nothing....".

I'm headed out to pick up Bella from school and meet Ben so he can take her to an appointment with her dentist. I wish I could go to the appointment, but our kids have us ... Read more

Stephanie Griggs posted a new journal entry, "Sicko Bella".

Bella is still not able to tolerate her tube feedings and we are going on day 5 now. It just runs right through her as she sleeps at night, not bothering to stop in her ... Read more

Stephanie Griggs posted a new journal entry, "sick mom = forgotten important stuff".

So what happens when mom, dad, and all 3 kids are laid up in bed with a virus for 2 days, unable to do anything but breathe, puke, and sleep? I'll tell you what ~ a house ... Read more

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