Aaron Insley's Journal
Written Feb 1, 2014 2:17pm
What a wild winter this has been with the cold and snow! So glad we can choose not to take Aaron out on these frigid days when schools are closed and even our aides cannot make it in. Let’s hope that those days are past us as we go into February!
We continue with the music and massage therapy at home with Aaron, and value these services that we are able to provide for him. It’s always gratifying when Aaron’s home care nurse does the blood draws twice a year and reports to us that he is healthy in every category. We checked the levels of Vitamin D for the first time, in order to be sure we are doing everything possible to ensure good bone density, and with the addition of a supplement last fall, this too is in line.
Once again we are coming up on our annual Stargazing, the gathering which celebrates Richard’s life and his love of astronomy by using his telescope. We will hold this event on February 22nd, Richard’s birthday. It’s hard to believe that he would have been 30 this year. Most of you know the details—buffet supper at 6, stargazing at 7—but please call or email if you need more information or would like to attend. We have activities for children and lots of hot cocoa for cold weather viewing, but can’t guarantee clear skies.
Written Dec 8, 2013 7:54pm
We made it through another Thanksgiving weekend, through the sixth anniversary of the boys’ accident. Many thanks to those of you who were thinking of us and called. With my mom still unable to get around easily, we opted out of the traditional gathering and went out to eat with Jenn one evening and my mom another. Thanksgiving Day was a quiet day at home for baking holiday goodies and working on Christmas cards. Aaron is now finished with his fall round of appointments and we will be taking our wheelchair conversion van in for maintenance on the ramp system.
We are fortunate to be having our home care visits continue through the winter—home care nurse, massage therapy, and music therapy. We have a new music therapist, a young woman with a beautiful voice and a variety of instruments. It is interesting to see how Aaron is responding to a female voice now, after a male voice over the past year. She is skillful in engaging his gaze and getting him to follow her with his eyes, called “tracking.” Even when the session begins with Aaron seeming restless or agitated, it ends with him appearing to be relaxed and satisfied. Likewise, the therapeutic massage therapy sessions give Aaron a reprieve from his periods of restlessness, and we are pleased to see him so completely relaxed, even if it is for just a few hours after the treatment.
The Christmas season is still in a process of being re-invented for our “new normal.” Tom saved a few vacation days so we have time to go out and enjoy these short daylight hours while we have help at home. We are keeping with some of our traditions, discontinuing others, and for the most part trying to stay under the radar of all the rushing around of the season. We look forward to the New Year and making plans for the Stargazing on Richard’s birthday, Tom’s outdoor trips, and hopefully some time away for the two of us.
Holiday greetings to all of you, thanks for staying with us, and our best wishes for the New Year.
Written Oct 30, 2013 12:27pm
There are times that we realize how fortunate we are that Aaron’s health is so stable and that we have such excellent help. This month has been another very busy month with Carol’s mother, who fell on Sept 30 and broke her femur. Between the daily phone calls, every-other-day visits, the management of her medical and business affairs, and the maintenance of her 12-year old cat, we have had our hands full. She is ready to go back to her assisted living apartment tomorrow, and with additional help, we have our hopes high that she will not fall again. On the days when we have help at home, I have been busy all day with errands and it is actually a relief to have a day when I have to stay home and care for Aaron myself. He is good company, (a very good listener!) I can catch up on work at home, and I am still able to have people come to the house for his therapy. Only two more appointments left for Aaron before winter.
Tom did get up to the Boundary Waters for a canoe trip (photo on Cherokee Lake), while I stayed home to host a visit from my BFF from Chicago.We both had beautiful weather and excellent conditions. The following weekend we made a quick trip with the camper to enjoy hiking and lots of laughs with the dogs. We are ready for that quiet stretch of weeks we’ve been counting on and hope it will come soon. It’s rather unusual that most of our leaves are still on the trees at this time, and are still very colorful.