My Story

My Name is Ian. I am a very special guy. My sister calls me "Ian Dude". Mommy and Daddy created this site to let you know how I am doing. You can read my full story below. You can also check back to read journal updates and see pictures of me. If you would like to be notified when my journal is updated, just check the box below. Thanks for visiting!

Journal

Sunday, June 14, 2009 12:49 PM, CDT


Happy to say that we all had a great night's sleep in our OWN beds last night- hooray!  (or as Ian says, "ray" as he puts his hands up in the air ;-)  We got home about 3:00pm yesterday afternoon.  James and I had tickets to an outdoor wine and food benefit event last night and after a quick power nap, we actually went!  Ian was doing well, and my mom stayed here at the house with the kiddos so that we could get out and enjoy some fresh air.  It was just what we needed.  Ian was wired last night and wide awake when we got home.  He slept in this morning until 9:30.  He is a little lethargic this morning and coughing a bit.... I continue to walk on eggshells.  We will talk to the pulmonologist tomorrow to get the results of the cultures and make decisions about what medications he should be on.  Thanks again for all of your notes, thoughts, prayers.  Have a great day.


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