left this earth 2/19/2009
after 7 years + 7 months
Lives forever now with his good friend, Jesus...
May 24th, 2008
We’ll start our story 8 years ago…
It was spring and we had just miscarried twins. We were trusting in our Lord that He was at work in our lives even when we didn't understand and couldn't see. That autumn by God's design we sold our town home and moved into our current "family" home - two weeks later we found out we were to have a new baby.
We had a difficult pregnancy and so many times it looked as though we would lose this child, but God allowed him to arrive four weeks early, but safely on July 19th - we named him Ian, which means "God is Gracious".
In these almost seven years we’ve been so blessed with a happy, gentle child. He has a marvelous imagination and loves to play.
This past month we’ve seen marked changes in our boy. He had a bout of bronchitis that they treated with antibiotics. Then two weeks later he began having a dizziness and difficulty seeing. We took him back to the pediatrician who said there was an inner ear fluid which we thought explained the symptoms. His Kindergarten teacher, felt there was perhaps something more going on and was blessedly persistent in sharing what she was seeing and her concerns about it. On her recommendation we took him again to the pediatrician who examined him more fully and recommended an MRI scan.
The head scan was done yesterday, on May 23rd, 2008 and did indicate a sinus infection, but also revealed the source of Ian’s symptoms – a brain tumor. This tumor is located deep in the brain on the brain stem. It is called a brain stem glioma, also known as diffuse intrinsic pontine gloma (DIPG). It is inoperable. It is producing symptoms of weakness, imbalance, and difficulty swallowing and breathing also vision and hearing issues. The "statistics" aren't good.
We must look at this through eyes of Faith. Therefore, through prayer with doctors who share our Faith, a path has been marked out for us and we will follow one step at a time. God has given us the top man – the director of the clinic – of pediatric neuro-oncology at the University of Minnesota who will be our primary physician during this process and will be guiding us through this. We will also be working with the top pediatric radiation specialist – the head of radiation therapy at the Fairview Children’s University of Minnesota.
We are relying on the only PHYSICIAN who CAN touch this. The Great Physician who made our son and therefore knows him intimately.
We believe God is guiding our steps. We trust Him to sustain us and to work His will in this situation. Please pray to that end. We ask Him for perfect healing and believe that He is more than able yet we surrender to His Will - whatever it is.
Thanks for your love and prayers - we need them!
Update: MRI Scan 8/19 showed 65% reduction in volume.
MRI Scan 10/14 showed stability - no change.
MRI Scan 11/14 showed re-growth starting in two areas.
MRI Scan 1/19/09 showed tumor is aggressively growing and has doubled in size since November.
2/19/09 - Jesus called Ian's name and he flew home...
Some have asked for our mailing address:
104 W. 136th St.
Burnsville, MN 55337