My Story

Ian Thomas Henderson
left this earth 2/19/2009
after 7 years + 7 months

Lives forever now with his good friend, Jesus...

May 24th, 2008

We’ll start our story 8 years ago…

It was spring and we had just miscarried twins. We were trusting in our Lord that He was at work in our lives even when we didn't understand and couldn't see. That autumn by God's design we sold our town home and moved into our current "family" home - two weeks later we found out we were to have a new baby.

We had a difficult pregnancy and so many times it looked as though we would lose this child, but God allowed him to arrive four weeks early, but safely on July 19th - we named him Ian, which means "God is Gracious".

In these almost seven years we’ve been so blessed with a happy, gentle child. He has a marvelous imagination and loves to play.

This past month we’ve seen marked changes in our boy. He had a bout of bronchitis that they treated with antibiotics. Then two weeks later he began having a dizziness and difficulty seeing. We took him back to the pediatrician who said there was an inner ear fluid which we thought explained the symptoms. His Kindergarten teacher, felt there was perhaps something more going on and was blessedly persistent in sharing what she was seeing and her concerns about it. On her recommendation we took him again to the pediatrician who examined him more fully and recommended an MRI scan.

The head scan was done yesterday, on May 23rd, 2008 and did indicate a sinus infection, but also revealed the source of Ian’s symptoms – a brain tumor. This tumor is located deep in the brain on the brain stem. It is called a brain stem glioma, also known as diffuse intrinsic pontine gloma (DIPG). It is inoperable. It is producing symptoms of weakness, imbalance, and difficulty swallowing and breathing also vision and hearing issues. The "statistics" aren't good.

We must look at this through eyes of Faith. Therefore, through prayer with doctors who share our Faith, a path has been marked out for us and we will follow one step at a time. God has given us the top man – the director of the clinic – of pediatric neuro-oncology at the University of Minnesota who will be our primary physician during this process and will be guiding us through this. We will also be working with the top pediatric radiation specialist – the head of radiation therapy at the Fairview Children’s University of Minnesota.

We are relying on the only PHYSICIAN who CAN touch this. The Great Physician who made our son and therefore knows him intimately.

We believe God is guiding our steps. We trust Him to sustain us and to work His will in this situation. Please pray to that end. We ask Him for perfect healing and believe that He is more than able yet we surrender to His Will - whatever it is.

Thanks for your love and prayers - we need them!

Update: MRI Scan 8/19 showed 65% reduction in volume.

MRI Scan 10/14 showed stability - no change.

MRI Scan 11/14 showed re-growth starting in two areas.

MRI Scan 1/19/09 showed tumor is aggressively growing and has doubled in size since November.

2/19/09 - Jesus called Ian's name and he flew home...

Some have asked for our mailing address:
104 W. 136th St.
Burnsville, MN 55337


Debra Henderson posted a new journal entry, "Four years".

When I don't write anything for over a year it's hard to know how to begin.  Maybe this isn't even the place to write.  Only I wanted to share a little update about how ... Read more

Debra Henderson posted a new journal entry.

Today would have been the first day of fifth grade for Ian.  He's been Home for three and a half years. It seems like yesterday and forever all at once.  We miss him ... Read more

Debra Henderson posted a new journal entry.

Eleven years ago I was in labor...Ian Thomas arrived in the wee hours of the morning on July 19th, 2001.  I just spent the past few hours talking about him with a sweet ... Read more

Debra Henderson posted a new journal entry, "Merry Christmas".

Three years ago today we had our final Christmas with Ian.  Today was our first Christmas morning since then to wake up here at home.  We're thankful that it's Sunday.  ... Read more

Debra Henderson posted a new journal entry.

Perhaps in this of all places I can honestly confess the grief, pain and loneliness that is threatening to undo me lately...You would think that things would be getting ... Read more

Debra Henderson posted a new journal entry, "Ian's 10th Birthday".

Summer days make us think of Ian – especially July days.  Our little buddy bear was born in the wee hours of July 19th, 2001.  This coming Tuesday would have been his ... Read more

Debra Henderson posted a new journal entry, "God is Gracious".

Three years ago today we got Ian's diagnosis.  In this season when motherhood/fatherhood are celebrated and new life returns to the earth, we wrestle with feeling ... Read more

Debra Henderson posted a new journal entry, "Preparing to take one more step toward healing".

Hard to believe we're coming up on 3 years since we first got Ian's diagnosis - May 23rd, 2008.  We miss him so much! I survived another mother's too many of you ... Read more

Debra Henderson posted a new journal entry.

As the two year anniversary of Ian's Home going approaches, I wanted to write...Today I got to see four of Ian's little buddies in four different places.  It's amazing ... Read more

Debra Henderson posted a new journal entry.

We have so many friends on Facebook ect. that are sharing about first day of school excitement...we're happy for them of course, but somehow it sticks us a little too.  ... Read more

Show more recent activity