My Story

Ian was diagnosed with a stage 3, Favorable Histology, Wilms Tumor on 7/19/2005. At age 3 1/2, he has been a real trooper through all the surgery & medications, so far... This is the place where we will keep everyone up to date on his progress.

Ian has been off treatment for 3 years! Next check up 07/07/2009 (chest x-ray, abdominal ultrasound, bloodwork and exam).

Journal

Thursday, June 25, 2009 6:17 PM, CDT


We had a blast in DC!  We got in on Saturday night.  It was a long trip. 3 hours in the air.  Then the train from Baltimore to DC was running 30 minutes late.  Oh well.  We finally got to the hotel about 6:30.  On Sunday we, along with my friend Holly from Texas, visited Ford's Theatre and Arlington National Cemetary.  Ian LOVED the theatre and, I think, appreciated the cemetary.  Monday all 3 of us toured the Capital.  Holly and I appreciated that much more than Ian did.  Our CureSearch stuff started Monday afternoon.  The adults meeting featured former congresswoman Deborah Pryce and Dr. Reaman (I think) from the Children's Oncology Group.  The congresswoman did a great job rallying the group and the doctor spoke about research for leukemia.  Tuesday was the day!  The Oklahoma team (Ian, myself, along with Jim and Tammy Ward and their kids Emily and Remington) had 5 meetings. Congresswoman Fallin's office, Congressman Sullivan's office, Senator Inhofe and a member of his staff, Congressman Lucas's office and Congressman Cole's office.  All 5 are already on board with helping fund children's cancer research.  We heard that we were supposed to also meet with Senator Coburn's office but that meeting was cancelled as the senator was out of town.  That being said we have NEVER met with the senator, so I think his office just chickened out.  We went to the Museum of Natural History on Tuesday as well.  On Wednesday we saw the White House and before heading home.

One of the neatest things happened Tuesday afternoon.  My friend Kris from Minnesota calls me and says that her son, Wyatt, has been invited to join a congressman from Minnesota on the House floor for the evenings vote and she wonders if I could get Ian invited down as well. A quick phone call to Congresswoman Fallin's office sets it all up!  Ian spent probably 30 minutes on the House floor with her, voting for her and a few other members!  Sorry I don't have pictures from inside.  No camera's allowed. I had to sit in the gallery. :)

It was a good trip.  We had lots of fun seeing old friends and meeting new ones.  There were some friends absent that we wished could have been there.... Amy, Charlcie, Curt....  Missed you all!  Maybe next year?

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E-MAIL AUTHOR

tessasmomy@yahoo.com

HOSPITAL INFORMATION

Jimmy Everest Center at OU Med. Center
Oklahoma City, OK 73107