Romans 12:12 Rejoice in hope, be patient in tribulation, be constant in prayer.

My Story

Lucas was born July 31,1997. He was diagnosed with Sanfilippo B, MPS III - B, in January 2006. It is a life limiting disorder, there is no cure.

Lucas' you tube videos

LAPS FOR LUCAS

Arc Newsletter

Article 11/06

Donate to the National MPS Society

2007 MPS AWARENESS DAY photos

MAY 15TH IS INTERNATIONAL MPS AWARENESS DAY

lapsforlucas@yahoo.com

KWWL AWARENESS NEWSCAST 5/07

substrate deprivation therapy possible treatment to halt progression of the disorder.

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Journal

Thursday, July 2, 2009 3:06 PM, CDT


I uploaded some really fun videos that I want to share.
The first one is of Lucas drinking from his cup, I now have 
him busted so whenever he tries to play the helpless role with caregivers they will all know he is pulling their leg  lol.
The second one is of him watching Little Bill.  He was watching TV while I paid bills online.  He was having such an awesome time enjoying the cartoon I had to stop and capture it!  Hope you enjoy them both as I did !
http://www.youtube.com/watch?v=kbYspbOhC6g
http://www.youtube.com/watch?v=qw27XPpjsUM

 

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HOSPITAL INFORMATION

University of Iowa Hospitals and Clinics
200 Hawkins Drive
Iowa City, IA 52242-1009
United States
(319)356-1616