Journal entry by Holly Loughlin —
A few weeks prior to our trip I started being more short of breath. Over the course of 2-3 weeks it escalated to me coughing a lot more and bringing up much more mucus. My cough was even waking and keeping me up, which is not at all usual for me at this time. I was keeping in touch with clinic and ended up going in for an appointment with PFTs a few days before we were scheduled to leave. I didn't exactly feel sick the way being sick usually feels to me and that made figuring out what to do more challenging.
My PFTs were down some, but not hugely, so considering all the factors, we decided to 2 weeks of an oral antibiotic. Orals alone do not usually work for me, but I was really hoping that it combined with everything we were planning to do in Indiana would be enough to kick whatever was going on. So, we packed up - and let me tell you, it always looks like we are moving! My Afflovest and charger, compressor, nebs (nebulizers), fridge meds & a cooler for the fridge meds, oral meds in pill organizer, regular neb meds, bag of neuro tools (we forgot the chargers, but the team has plenty, so we borrowed theirs), clothes (it's winter? So, layers), knit/crochet bag, my book to read, Bible and Greek-learning books, phone and charger, toiletries, pillows, and blankets. J then also has to bring his clothes, meds, school books, Bible, toiletries, pillows, blankets, and cpap. AND we decided Eli was ready to go with us this time, so him, his gear, crate, toys, food, and treats. Since the place we stay has a kitchen, we also stopped by Aldi on the way in to get groceries.
We had church Sunday morning, so we came straight home afterward and loaded up what we'd already packed as well as all the last minute things. I was wiped out, so as tired as he also was, J drove first. I fell asleep almost immediately and didn't wake up until we were through Chicago. About halfway we switched and I drove. Eli did great. He loves car rides and going literally anywhere. He has such FOMO that he just wants to do whatever we're doing.
We got there about 9pm their time (an hour ahead of us), so we just dumped our stuff inside, made dinner, (did my treatment), and went to bed. It was a looooong day and we were all pooped, but it was a good day.
Stay tuned for Day 1 recap...
My PFTs were down some, but not hugely, so considering all the factors, we decided to 2 weeks of an oral antibiotic. Orals alone do not usually work for me, but I was really hoping that it combined with everything we were planning to do in Indiana would be enough to kick whatever was going on. So, we packed up - and let me tell you, it always looks like we are moving! My Afflovest and charger, compressor, nebs (nebulizers), fridge meds & a cooler for the fridge meds, oral meds in pill organizer, regular neb meds, bag of neuro tools (we forgot the chargers, but the team has plenty, so we borrowed theirs), clothes (it's winter? So, layers), knit/crochet bag, my book to read, Bible and Greek-learning books, phone and charger, toiletries, pillows, and blankets. J then also has to bring his clothes, meds, school books, Bible, toiletries, pillows, blankets, and cpap. AND we decided Eli was ready to go with us this time, so him, his gear, crate, toys, food, and treats. Since the place we stay has a kitchen, we also stopped by Aldi on the way in to get groceries.
We had church Sunday morning, so we came straight home afterward and loaded up what we'd already packed as well as all the last minute things. I was wiped out, so as tired as he also was, J drove first. I fell asleep almost immediately and didn't wake up until we were through Chicago. About halfway we switched and I drove. Eli did great. He loves car rides and going literally anywhere. He has such FOMO that he just wants to do whatever we're doing.
We got there about 9pm their time (an hour ahead of us), so we just dumped our stuff inside, made dinner, (did my treatment), and went to bed. It was a looooong day and we were all pooped, but it was a good day.
Stay tuned for Day 1 recap...
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