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Henry’s Story

Welcome to Henry's CaringBridge site. I've created it to keep friends and family updated about Henry's treatment for acute lymphoblastic leukemia. We appreciate your support and words of hope and encouragement during this time when it matters most.

P.S. We hate cancer and hope you feel the same.

Latest Journal Update

6-month Post Transplant Checkup

Hi, friends.


We just completed Henry's checkup and it seems like everything went really well. He saw his gastroenterologist, pulmonary specialist, transplant doctor and had a number of labs, tests and procedures. Overall, our doctors are very, very happy with Henry's progress. He is able to change from 24 hours per day on his feeding tube to only 12 hours overnight. We won't miss that beeping backpack during the day AT ALL. Also, we took advantage of Henry's biopsy sedation and had them replace Henry's GJ tube with a new one today. We will not have the results of his bone marrow biopsy that checks for cancer and the status of his maturing bone marrow until next week. However, our BMT doc released Henry to start back to preschool next week! Hooray!


Henry was diagnosed with leukemia a year ago yesterday and hasn't been back to school regularly since then. It is a giant step forward for him and a big step toward putting our life back together. Uff-da, it has been quite a year. It's Ryan's birthday today and compared to last year it's been pretty great.


I'm including a quick little video of henry imitating his favorite Tom & Jerry video. He finds himself pretty hilarious!


xo-


Misty
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Comentarios

18 Comentarios

Barret Schmitt
By Cate Birmingham from Unit 4 :)
Way to go, Henry! The video is great too! So bummed I missed you guys when you were here!! But so so happy to hear everything went well!! How exciting he can return to preschool, hope he has a blast! Think of you all often! :)
Erin Osborn
By
So happy for him! Bet he can't wait to get back to preschool and spend time with friends!
Corey Thompson
By Corey Thompson
Gotta love Tom and Jerry! They are one of my favorites too!

Henry - you keep up the good work an we are so glad you can put a smile on everyone's face. Blessings! Thompsons
Shannyn Irey
By Shannyn Irey — last edited
Yayyy Henry & fam!! He looks SO good in that video! Wow!!! So awesome to hear that he is doing good! I am thankful that he is back home and doing good, but we sure do miss you all on U4! =) keep up the hard work, buddy!!
Sandra Haman
By Sandra Haman
Hooray Henry! Your video tells Cancer just what will happen if it "touches my boy again"! Preschool misses you as much as you miss it. Hooray, Henry.
P.S. I'm sending you & Will a package.
Shelly Cosgrove
By Shelly Cosgrove
Yay! Such fabulous news! God is so good! Congrats!
Carol Walker
By Grandma Carol
Thank you, God! Henry you are amazing! So very happy you are all on the path to a more normal life. Keep up the good work guys, and good luck at day care Henry!
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Mary Sandbulte
By Mary Sandbulte
Oh what wonderful news! Henry, I am so excited to hear that you will be able to go back to preschool next week - awesome news! :) My 16-year-old son loved the video! (he always liked watching Tom and Jerry when he was your age!)
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Penny Lucas
By Penny
Hooray for you, Henry! I liked your video, too!
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Cindy Moegenburg
By Cindy Moegenburg
Soooo very happy for you all hearing the outcome of the follow up visit.
God is good!! Will continue to keep you all in my prayers.
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