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Henry’s Story

Welcome to Henry's CaringBridge site. I've created it to keep friends and family updated about Henry's treatment for acute lymphoblastic leukemia. We appreciate your support and words of hope and encouragement during this time when it matters most.

P.S. We hate cancer and hope you feel the same.

Latest Journal Update

+63

Hi, friends.


More of the same here with Henry's condition. We are doing some trials with his tubes to see if we can get his bladder to break down and expel the clot. His biggest struggle right now is lungs and respiratory. He still requires a lot of oxygen through a high-flow nasal cannula or a cpap machine. Even though the virus is not in his blood, it is still making his lungs very sick.


Despite all that, he has been a trooper doing therapy every day to strengthen his legs. He couldn't get up or stand by himself after the surgery and you can see in the video that his legs are getting strong. I marvel at his determination to work with all the tubes he is carting around. Be warned that he got a little nauseous and gags the last couple of seconds of the video (don't watch it, KT!) but he actually kept working through the nausea. He is our little tough guy.


On a lighter note, Henry and Will pooled all their money this weekend and bought a WiiU. They love it and have been playing like crazy. Playing video games has been really good for rehabbing Henry's thumb that suffered nerve damage from an arterial line placed in ICU. Will earned his share of the game through chores (and probably schmoozing his grandparents a little). Henry's share of the money came from the piles of cards filled with $1 bills. Some of you heard of Henry's fondness for having lots of $1 bills ($10s and $20s just aren't the same) and he incredibly had enough to help Will buy the game system. So, to all of you who sent him dollars, thank you. You truly made a couple of little boys super happy. We are so lucky to have a great support system and we never forget it.
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Comments

16 Comments

Shayla Burton
By Shayla Burton
LOVE the video!! You're such a tough boy, Henry! So happy they got a new gaming system, I bet they're in love! Hugs and prayers!
Myron Moore
By Myron Moore
Awesome job Henry! Thanks for the updates. Continued prayers to you all
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1 person hearted this
Nicole McDonald
By Niki McDonald
Thanks for the update Misty, what a trooper he is. I can't wait to see him break free of all the tubes and walk down the hall a free little man. Love you all, keep your spirits up!
Aunt Niki and Uncle Neill
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Cara DeCourcey
By Cara DeCourcey
Way to go, Henry! You're the bravest!! Praying for you all constantly!
Teresa Schumacher
By Teresa, Dylan and Jaden Schumacher
Misty, I am so happy that the boys are having some enjoyment over the weekend playing video games! I hope it continues! Prayers continue to be sent your way daily. Please let us know if you need anything!
Marilyn Weidenbach
By Marilyn Weidenbach
Wow, Henry got a lot of points today! Great job and I can hear his helper Will doing the math! Glad they got a gaming system...anything to help pass the time and get him more active in a safe way! I'm sure that the hours get very long. It is no fun being in the hospital! Soon he will be a "free boy!" :)