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Henry’s Story

Welcome to Henry's CaringBridge site. I've created it to keep friends and family updated about Henry's treatment for acute lymphoblastic leukemia. We appreciate your support and words of hope and encouragement during this time when it matters most.

P.S. We hate cancer and hope you feel the same.

Latest Journal Update


Hi Friends,

Henry was admitted to the ICU yesterday with breathing issues.  His breathing had become very labored and it was difficult for him to get a good exhale in so the docs thought it was best to send him down here to the ICU where he could be monitored more closely.  He's been doing very well today, his breathing is stable and seems to be less labored than before.  He's still on oxygen but was able to reduce the level some today so hopefully we can go down on it a little bit each day.  For now the doctors are perfectly happy to give him whatever assistance he needs while recovering from his lung problems.  It turns out there is still adenovirus lurking around in his mucus.  Most likely that's what's causing all the problems with his breathing.  The CT scan showed a lot of liquid in his lungs, it's no wonder he was working so hard to breathe.  If everything goes ok overnight tonight, we'll be able to get back up to the BMT unit tomorrow.

With all the various viruses Henry is fighting, the doctors are starting to wean him off of the cyclosporine he's been taking since transplant.  It's an immunosuppressant drug used to prevent graft vs. host disease.  Taking him down on it will hopefully speed up the recovery of his immune system.  It's not something that will happen quickly, just bit by bit over time to continue the coverage for graft vs. host while allowing his immune system to rebuild.

We are cautiously optimistic that Henry's bladder condition is improving.  His nephrostomy tubes have been clamped for two days now and the drip on his bladder flush system has been drastically reduced. So far there haven't been any problems and the liquid coming out in the collection bags looks to have a fair amount of sediment in it.  If everything is adding up correctly, that sediment should be evidence of a dissolving clot.  There will be another ultrasound taken tomorrow to see if the clot is any smaller.

Henry is in good spirits overall.  He's become a lot more talkative the past few days which is just great.  He's been winning the hearts of everyone with his spirit, now he's also doing it with his humor.  Take care all!