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Henry’s Story

Welcome to Henry's CaringBridge site. I've created it to keep friends and family updated about Henry's treatment for acute lymphoblastic leukemia. We appreciate your support and words of hope and encouragement during this time when it matters most.

P.S. We hate cancer and hope you feel the same.

Latest Journal Update

18 Months!

Hi, friends.

We just returned from Henry's 18-month post-transplant checkup in Minneapolis. It was a great appointment and wonderful to see our BMT family again. This was a quick checkup with labs knowing that the two-year appointment in August is the "big one" checking for any sign of residual disease and various post-transplant complications. All Henry's labs look good and his team marveled at what a grown up boy he has become in the last six months.

So, while all was wonderful with our trip and checkup, Henry started to feel sick about two hours from home and it went from bad to worse by the time we returned to Sioux Falls. When we arrived, he was shaking and shivering with fever. Although it was after 8:00, our oncologist asked us to bring Henry to the hospital to be admitted. They are running various tests and cultures to determine the source of the fever and monitoring his breathing. This is part of a very frustrating cycle of hospital admissions this winter. We can't seem to keep Henry well and breathing at 100%. Since school started, we have been inpatient more than 30 days with Henry missing a massive 40 days of school. It has been a real bummer for our family, but we just keep plugging along and hoping he eventually gets on top of the pneumonia, etc. I so badly want him to be able to resume life as a normal kindergartner.