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Henry’s Story

Welcome to Henry's CaringBridge site. I've created it to keep friends and family updated about Henry's treatment for acute lymphoblastic leukemia. We appreciate your support and words of hope and encouragement during this time when it matters most.

P.S. We hate cancer and hope you feel the same.

Latest Journal Update

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We're coming home!!


We had a care conference today and got the wonderful news that we're set to go home Monday morning. Henry will transfer to the Sanford Children's Hospital in Sioux Falls for (hopefully) a short transition stay before going home.


Henry still has issues we will have to continue to monitor: respiratory, nutrition, colitis and swallowing. He is on minimal oxygen during the day and the nutrition issues will just take time to heal. As for swallowing, it is Henry's biggest frustration that he can't drink thin liquids. The only thing he asks for from Santa is a drink of ice water. Our doctors have done every diagnostic test, including an MRI yesterday to monitor for neurological problems, and haven't found any significant problem causing the aspiration. So, he will continue to work with a speech therapist to regain this function. After all he's been through post-transplant, this is a mercifully short list of issues. Our family is beyond thrilled with the outcome and homecoming right before Christmas. We are excited to come home but will be nervous and sad to leave our BMT family here. We started saying our goodbyes today and I alternated between crying with joy and sadness all day long. I'm a mess! But a really happy, blessed mess.


I'll be sure to post pics of our big adventure on Monday morning. Have a great pre-Christmas weekend.


xo-

Misty