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Henry’s Story

Welcome to Henry's CaringBridge site. I've created it to keep friends and family updated about Henry's treatment for acute lymphoblastic leukemia. We appreciate your support and words of hope and encouragement during this time when it matters most.

P.S. We hate cancer and hope you feel the same.

Latest Journal Update

6-month Post Transplant Checkup

Hi, friends.


We just completed Henry's checkup and it seems like everything went really well. He saw his gastroenterologist, pulmonary specialist, transplant doctor and had a number of labs, tests and procedures. Overall, our doctors are very, very happy with Henry's progress. He is able to change from 24 hours per day on his feeding tube to only 12 hours overnight. We won't miss that beeping backpack during the day AT ALL. Also, we took advantage of Henry's biopsy sedation and had them replace Henry's GJ tube with a new one today. We will not have the results of his bone marrow biopsy that checks for cancer and the status of his maturing bone marrow until next week. However, our BMT doc released Henry to start back to preschool next week! Hooray!


Henry was diagnosed with leukemia a year ago yesterday and hasn't been back to school regularly since then. It is a giant step forward for him and a big step toward putting our life back together. Uff-da, it has been quite a year. It's Ryan's birthday today and compared to last year it's been pretty great.


I'm including a quick little video of henry imitating his favorite Tom & Jerry video. He finds himself pretty hilarious!


xo-


Misty
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Comments

18 Comments

Bonnie Quick
By Grandma Bonnie & Grandpa Russ
That is absolutely wonderful news, the answer to so many prayers. We're so happy for all of you. What a tremendous relief this must be for all of you.
Ryan, we're so happy that you can celebrate GREAT news this year. Safe travel for the return trip.
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Gail Deckert
By
A year. So grateful for the fight! What an adorable video!
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1 person hearted this
Vickie Terrell
By Vickie Terrell — last edited
Great news. Continuing prayers coming your way. This is a wonderful birthday present for Ryan.
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1 person hearted this
Teresa Schumacher
By Teresa, Dylan and Jaden Schumacher
I am so very happy for all of you!!! I am hopeful that this is just the first day of a new great uneventful year of bliss for all of you! God is good!!!
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1 person hearted this
Donna Davenport
By Kirk and Donna Davenport
Yay!!! Praise God for answered prayers!!
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1 person hearted this
Valerie Koch
By Valerie Koch
What a cutie! I love the video and the great progress Henry has made!
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1 person hearted this
Miriam Norris
By Miriam
Fantastic news and happy happy birthday Ryan. Hi to all
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2 people hearted this
Connie Conklin
By
AAAAMENNN!!!!!! We're so very, very happy for all of you! Way to go Henry!
Happy Birthday Ryan! Now you can really celebrate.
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1 person hearted this