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Henry’s Story

Welcome to Henry's CaringBridge site. I've created it to keep friends and family updated about Henry's treatment for acute lymphoblastic leukemia. We appreciate your support and words of hope and encouragement during this time when it matters most.

P.S. We hate cancer and hope you feel the same.

Latest Journal Update

+63

Hi, friends.


More of the same here with Henry's condition. We are doing some trials with his tubes to see if we can get his bladder to break down and expel the clot. His biggest struggle right now is lungs and respiratory. He still requires a lot of oxygen through a high-flow nasal cannula or a cpap machine. Even though the virus is not in his blood, it is still making his lungs very sick.


Despite all that, he has been a trooper doing therapy every day to strengthen his legs. He couldn't get up or stand by himself after the surgery and you can see in the video that his legs are getting strong. I marvel at his determination to work with all the tubes he is carting around. Be warned that he got a little nauseous and gags the last couple of seconds of the video (don't watch it, KT!) but he actually kept working through the nausea. He is our little tough guy.


On a lighter note, Henry and Will pooled all their money this weekend and bought a WiiU. They love it and have been playing like crazy. Playing video games has been really good for rehabbing Henry's thumb that suffered nerve damage from an arterial line placed in ICU. Will earned his share of the game through chores (and probably schmoozing his grandparents a little). Henry's share of the money came from the piles of cards filled with $1 bills. Some of you heard of Henry's fondness for having lots of $1 bills ($10s and $20s just aren't the same) and he incredibly had enough to help Will buy the game system. So, to all of you who sent him dollars, thank you. You truly made a couple of little boys super happy. We are so lucky to have a great support system and we never forget it.
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Comments

15 Comments

Bonnie Quick
By Grandma Bonnie & Grandpa Russ
Who needs all those Super Heroes when there's Henry? You are a real, true HERO! We can't wait until you can toss those tubes aside and take off all on your own. Will, what a great cheering section you are. You're the BEST! Can't wait to see you both soon.
Aunt Robin
By Robin Wilcoxa
Henry's fortitude is amazing! I am in awe watching him carry on with tubes, bags & all!
Karen Ebeling
By Karen Ebeling
Mr. Henry - way to throw those rings! And Mr. Will, you are an addition king!! I bet you do great in math!!!
Deb Wagner
By Deb Wagner
Sending our love and healing prayers your way! For all of you!!
Carol Walker
By Grandma Carol
I only have tears of joy, no comment for my precious boys
George Ham
By George Ham
What Schmoozing Grand Parents? Never heard of such a thing! We think you are making this up! LOL
JoAnn Bender
By
Way to go Henry....your the bravest! We continue to think and pray for u. Sending lots of love and hugs. Nick and JoAnn Bender
Sarah Berentschot
By Sarah Krupke
Way to go Henry!! Thanks for posting Misty. It's nice to see videos of his progress
Dani Ulschmid
By Miss Dani
Way to go Hen! Such a tough guy! And Will is such a loving brother! Miss those boys like crazy!
Shayla Burton
By Shayla Burton
LOVE the video!! You're such a tough boy, Henry! So happy they got a new gaming system, I bet they're in love! Hugs and prayers!