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Mi historia

Hi! I'm Ellie!

I'm 2yrs old and I have faced a lot in my little life. I am a joy to my family and I am a very brave girl. I am a Riley kid and I am extremely blessed to have a great team of doctors caring for me! Thank you for reading my story! Come back and visit often!

Ellie was diagnosed shortly after birth with a large perineal hemangioma, exstrophic bladder/bladder neck malformations, and tethered spinal cord (PELVIS Syndrome). In her first year of life she had three surgeries. Two were to correct her tethered spinal cord, and the third was to remove a portion of her bladder that was outside of her body (bladder exstrophy). The original plan was to have another surgery around the age of three to repair her bladder neck. But...........

Following routine pathology of the bladder tissue they removed, Ellie was diagnosed with  Rhabdomyosarcoma (Embryonal), a cancer of the connective tissue.  She completed a 46 week treatment plan of heavy chemotherapy, and in May of 2012 she had a radical cystectomy, removing her entire bladder and urethra and ALL of the cancer with it!  As of 3/25/13 Ellie is in remission! She will have a nice break before surgery in July to build her a continent urinary diversion.  Thank you for following her story! Your prayers and support mean a lot to us!

 Be strong and of good courage; do not be afraid, nor be dismayed,for the Lord your God is with you wherever you go. Joshua 1:9

Fuente

Jamie Griffith posted a new journal entry, "3!!!!".

I can hardly believe it! She's growing and doing so very well. Next scans are in mid-june and then in September she gets her Make a Wish! Mickey Mouse here we come!!!  Lea más

Jamie Griffith added a new photo.

Ellen signed Helen (Ellie) Grace's Guestbook.

Fantastic news!  And look at this gorgeous little girl!!!  I was just thinking about Ellie and the family, wondering how it was going, and it is great to get this ... Lea más

Grandpa Rob signed Helen (Ellie) Grace's Guestbook.

Ellie, God has and will continue to watch over you. The latest news is just one more example of God continuing to lay his hands on you. You are a fighter and a very cute ... Lea más

Sharon Montieth signed Helen (Ellie) Grace's Guestbook.

What a sweetie pie!  I was so fortunate to see & chat with her yesterday.  She'll forever be "Baby Ellie" in our hearts and prayers.  Lea más

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