I have to learn that the aim in life is God's, not mine. God is using me from His great personal standpoint, and all He asks of me is that I trust Him, and never say -- Lord, this gives me such heart-ache.... He simply asks me to have implicit faith in Himself and in His goodness. ~ Oswald Chambers
Harrison’s currently in surgery at Nationwide Children’s Hospital – he’s having his g-tube removed & then undergoing an MRI. So, I actually have a few minutes to sit & journal now. And, writing is keeping me occupied so I don’t stress and worry.
Trying to recap the last month seems daunting, but here goes!
Harrison continues to amaze me beyond words. Nearly every day, he has a new accomplishment, a new skill or some progress is made. He’s now going to therapy back at the hospital (it’s kinda like returning to the scene of the crime & it fills me with mixed emotions to be back here daily).
In PT, he’s progressed so much. Yesterday, he walked on the balance beam with little assistance, then stood on a large balance ball & threw bean bags, with his right hand. His balance and strength are so much better than even a month ago. He’s motivated to recover so he can skateboard again, and he talks about it every day. I tell him to visualize himself on his skateboard, at the park with his friends, and it seems to help him when he gets tired and wants to quit.
And his right arm & hand have regained so much coordination and strength. He has control of them now, and uses them without my reminding. It’s amazing to see him climb the stairs without assistance or unload the dishwasher with me. Little things, but to us, they’re daily miracles : )
In OT, he’s working on typing on the computer (he went to his Myspace page & YouTube yesterday) & writing. He’s also come a long way with fine motor skill tasks like buttons & zippers. He’s more independent each day.
Speech therapy is coming along, too. His pronunciation of words is getting clearer, which means less frustration for him. We practice sounds and do vocal & mouth exercises a lot during the day (yes, I just make silly games out of his “homework” & completely humiliate myself – but it works).
Hopefully in the next week or two, Harrison will start working with a tutor from school. He doesn’t seem overly excited about it, but he knows it’s important because it’s another step closer to returning to school. His goal is to be back at Lakeview, at least for a few classes, before the end of the school year. I have no doubt he can do it.
His overall attitude and mood continues to improve, and while he still has bouts of combativeness and anger, it’s much better. Really, other than therapy, he’s not hitting or yelling much at all. That’s quite an improvement, and I need to remember how far he’s come.
Other tidbits of good news – his comprehension is amazing. We’ve come to realize that he truly does understand everything; it’s just getting his response organized in his head and then being able to verbalize it. His reading and comprehension are incredible. And his sense of humor continues to recover, as he does. Each day, there are smiles and laughter now (which helps off-set the bad stuff), and I try to be thankful for each one. When H smiles at me, or does his silly dance to make me laugh, I want to fall to my knees and thank God for what He has given us.
And each morning, Harrison starts his day with his daily mantra (in the mirror). He says – “Every day, I’m getting better & better”. And then he says, “God is healing me, God is restoring me, and God is with me always”.
So, while I’m beyond exhausted and completely worn out, it’s all good (and it’s only temporary, right?). I know as he continues to recover, I’ll get more rest, a few more breaks and be able to catch my breath.
Please remember H in your prayers, as he continues to be a true miracle and testament to God’s amazing power and love for us. And please say a special prayer today that he comes through the anesthesia and procedures with flying colors. Removing this tube is that last vestment from his accident & how great is it that he’ll be tube-free?!?
I have many new photos to post, so I’ll try to do that when we get home. Meanwhile, thank you so much for your love, support and prayers. They sincerely help.