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Harper Marie’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Latest Journal Update

I'm going to school!

Today was a big day for Harper! She and mommy went to visit Maryland School for the Blind. We have had all our prayer warriors doing their amazing praying and our prayers were answered. She will begin MSB in the spring! Tara said the school is fabulous! Tara said a little girl came over to Harper and talked to her and harper smiled and smiled! Mommy took her into the light and sounds sensory room and she loved it. Her sister Teagan was grouchy on the way home and was crying. Harper thought it was funny and smiled and giggled at her sisters crying. Now if that isn't a typical sister reaction! Harper has been battling an infection recently she's experienced low body temperature as in 93 degrees! You'll see in her picture she has her Hello Kitty hat on. Low body temperature is caused by her brain injury. It's called an autonomic response. Tara has to keep her warm all the time. Her temp has come up to 96.7. Mommy is weaning the valium she has been on for about a year. She's down to half dose and on her way to being off completely. Harper takes a lot of medication. Tara and billy feel in definitely keeps her foggy and hampers her improvement. Pop and I agree. We have been praying and I ask all of you to pray on her medication. Ask God to guide the doctors to begin weaning her so she can begin to be more aware of her world! Seizure meds are extremely sedating. Children who have seizure and need to take a lot of meds to control can be very cognitively impaired by meds. Tonight I am grateful for the new journey Harper will begin in a few months! God bless!
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Comentarios

10 Comentarios

joanne shimko
By Joanne
So happy to hear that Harper will be going to school! I am sure that she will love being with the other children! Thinking good thoughts as she begins this new journey.
God bless you all!
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Kathleen Cronin
By Kathy
Wonderful news. Teagan is probably jealous that Harper is gong to school and that is why she was crying! You are all in my continued prayers and I wish Harper continued progress as she begins a new phase in life.
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Jeannea Adams
By Jeanne
Thanks for the wonderful update! The school is so important to help her learn her strengths and skills. I'm so happy for her. Weaning the meds can help with her responsiveness but of course it has to be done carefully. Harper looks so good.

Charlotte went the other way and felt hot all the time. We had to keep her room cold and turn a fan on her. This will get better too with time.
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Pat Molloy
By Pat
That is the most wonderful news. More than anything, I thank God for Harper's good fortune in being born to such a wonderful family. Billy and Tara are such great parents, and you and Mike are such devoted and loving grandparents. I love you all.
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Karen Walker
By Karen Walker
Thank you Lord for all that you are continuing to do in Harpers life. We thank you for the healing and blessings that have been done and are excited about the healing yet to be done to your honor and glory!! Bless our little Teegan and mommy and daddy as well.
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Carolyn Katchmar
By Carolyn Katchmar — last edited
I am so happy Harper will be able to go to the Maryland School for the Blind. I'm sure she will enjoy it. We will pray for her especially regarding the medication. I'm sure Harper will be happier. She is very lucky to have such a caring family. I couldn't stop laughing when Teagan was crying and Harper laughed. She is a true sister!
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Jenni Rorick
By Jenni
Janet, I appreciate the sweet, sweet picture and the update. Harper is an amazing little girl and I'm so glad she is part of your amazing family I will continue to pray for her and for all of you who are loving and caring for her. So glad she will be starting school soon! Teagan is a beautiful addition to your family and such a pretty baby too!
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Christine Fernandez
By Christine Fernandez
So happy for yall! Praise be God. Praying for many more blessings. :D
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Jane Bowley
By Janie
That is such wonderful news! I'm sure Harper will love being with the children at school. I will be praying about her meds and her improvement.
God bless you all!
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Barbara-Ann Britten
By Barb Britten
Wonderful news!! God is listening to our prayers!! Hugs
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