Update 6/25/14

Last night was tough! I was in major hawk mode- watching Harlan's every move all night. 

Around 5:30pm he fell asleep; early I know but a sign his body was trying to get relief. He slept solid until midnight. When he awoke he at 2 1/2 oatmeal pouches and said he needed Tylenol. After dosing him he laid down till about 3am when he woke up whining and holding his head. At that time I gave himheavier pain meds. He never really went back to sleep after the 3am wake up. Around 6:30am we got out of bed this morning. 

Today his mood has been better, not as much rubbing of the head, but I have been staying diligently on top of pain meds regardless. He managed to take a 2 - 2 1/2 hour nap which I know his sweet body desperately needed. 

Praying tonight he's able to sleep through the night with minimal pain. These infusions just cause him so much grief for the first couple of days. I'm thankful there will be no more. 

Thank you to each and every one of you for praying for our boy. - Jacki

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