×

Make Sure Hannah Is Not Alone This Holiday Season

Your contributions to Hannah's journal this year made sure that they never felt alone. Your tax-deductible donation in Hannah's honor will make sure that Caringbridge continues to bring hope and healing to those who need it most.

Donate Now

Hannah’s Story

Hannah received her new bone marrow  June 25th. Thank you unknown donor! May God bless you with lifelong health.  Send cards or pictures to Hannah for her wall at:  
HOME!!!!!!!!!!!!

Hannah Wertens
65 Tallman Ave
Portsmouth, R.I.
02871



 

 

On December 18, 2005, Hannah complained of knee pain. I thought she may have hurt herself the night before at her sisters 13th birthday party. She was running around with the big kids. She never complains and tries to keep up so it was not unusal for her not to tell us that she was hurt. By that late afternoon she refused to walk. We took her to the ER and she had Xrays. They sent us to Hasbro as they thought she had Septic joint and her Seg rate was high. We stayed over night and then went home. They thought she had toxic sinivitis. She had a cold a couple of weeks before and they thought it settled in her knee.

She started to feel better and then a week later she fell off her stool washing her hands and would not walk, back to the ER on Christmas. They thought she was just scared because of what had happened before and she was faking but she did have an ear infection. Her pediatrician was on vacation so we went to the oncall a few days later. She sent us to get Xrays- they came back and she started to feel better.

Her doctor came back and I just wanted him to look at her because she still had a slight limp. That was Jan.4,2006. Then she stopped limping and returned to preschool on Jan. 5, and I went back to work. Then the world went backwards and ceased to make sense. My grandmother died that day and I was at the funeral home making the arrangements when the nurse called and asked me to bring Hannah in for the test results. I knew something was wrong because they usually tell you over the phone. I thought it was septic joint and I was worried she might to have a needle in her hip, how I wish. Thank goodness my parents were there and we picked up Hannah from school. Her doctor said it was Leukemia and we have to get her to Hasbro right away... they were waiting for her. All I can remember saying over and over is NOT MY BABY!!!!!

I was dropped off to pack for the hospital while they picked up her sister from school. I had a few minutes to prepare Cynthia that her great grandmother died and that her sister was very sick and that she needed to stay with her grandparents for a week (which turned into a month).

We went to the hospital and they began telling us that they were positive but she needed to have a spinal and a bone marrow aspiration to find out which type. They would do it in the morning. Everything moved so fast. They had lots of information and then we found out it was A.L.L. They explained the different parts of the protocol and that next Monday they would put a port in her chest that would be for her medicines. She would start chemo that day. She had a ton of chemo and many blood transfussions and platelet transfusions. It seemed that she was getting medicine around the clock. They were teaching us about all the medicines to go home after 2 weeks.

Just as we were about to go home she had developed a fever and had to stay so she could be infused with antibiotics. Because fevers are life threatening, any time she has a fever we need to get her to the hospital within an hour and we live an hour from the hospital. I cried pretty much the entire month telling Hannah I had belly aches. She would try to make me feel better by saying "I love you all day, Mommy"

Then one day she said "Mommy cry, mommy sad, mommy worry about me"- only 2 years old! I had to pull it together and did not cry in front of her any more.

She had always been tiny and she weighed 29 pounds when we went to the hospital and by the time we went home she weighed 42 pounds, her skin stretched so much it looked plastic and looked like she was uncomfortable. She could not walk that much. Her muscles were weak and she had gained so much within a couple of weeks. She needed to be carried and pushed in the stroller and her moods were very up and down and emotional.

She was on steriods for the entire month and would continue throughout the entire 3!!!!!!!! years of treatment in different amounts, at the least 5 days a month. She would get so hungry wake up at 2 am in the hospital screaming and crying for bacon and clam cakes and pepperoni. She would cry and said that her eyes were not right. She had seen more doctors because her eye would just about close and she could not control it. She had many more transfussions and her counts were down and her ANC would bottom out to nothing.

We went home and had to get used to a new life. I was on leave and she could not go back to preschool, it was to dangerous. We had a visiting nurse and back to the clinic at least once or twice a week. Then at the end of February I told the visiting nurse that if she had a limited time that I thought we would be ok until she had to be accessed at home later in March. Well on March 4, two days after she had her 10th surgery to put the chemo in her spine and brain, she had seizures, petite and grandmal.

Latest Journal Update

Update

Hi My Friends,
   
         I have a huge prayer request for our friend David! He is in Boston in the hospital and is not stable enough to go home with hospice. He has been fighting for 3 1/2 years after being given 4 months and I am sure it is do to his great strength, wonderful family and all the prayers! Please, please pray for him and his wonderful family !!!!! Thank you all so very much! Hannah is having a hard time understanding why this is happening and keeps saying he is too nice , this can not happen we pray for him every day.She keeps asking why do bad things keep happening?    Anyone have suggestions ?
        
              Thank you all  so very much for all your PRAYERS and kind words and continued support on this long road!  They mean more than I can express! We received the results from the CAT scan and although not completely normal she does not need a biopsy! PRAISE GOD!!! Melissa said we will keep a close eye on her and she will do more PFTs . I thank you all so much for storming heaven with your wonderful prayers! Melissa and I discussed the hormone replacement and she is in agreement that she needs  to take them because it will do her more harm if she does not have them. So starting September 1 , Hannah will start the progesterone for ten days and every month the first ten days she will take it and then on September 11 we start estrogen everyday. 
      Yesterday we went to Hasbro to see her new Onc. dr  as Dr. Harrison left to take a job in Texas, if you see him tell him hi.   Hannah likes her which is good news ! She is concerned with all the issues that are going on and is going to try to help us stream line her appointments because Hannah is getting depressed about all the appts and she thinks her stress level is contributing to her health. She is going to try to find her  another counselor that deals with either cancer in children or PTSD and anxiety.  Her liver functions were high again and her cholesterol was 218 and triglycerides were 357, thyroid was 9.4 ,120 and TSH was 5.889. We need to get a repeat in a month. This could all be do to her fatty liver disease. She is sending the work to her gastrologist and we will find out if he wants to wait or do the biopsy! Please pray that these come back normal and she does not need a biopsy of her liver!!!! 
     
      Tomorrow we are going to Boston to see the diabetes specialist. Please pray this goes well and that Hannah does not get upset !   We could use more good news!  I really wish I had the words to tell you all how much I appreciate that you all are there for us it gives us such strength and it helps so much! Thank you all for  everything! Please continue to pray for Hannah's complete healing here on earth!  I know that God is in control and he can reverse all these  and that is what I am praying! Thank you all and I will keep you updated as we find out more and how she is tolerating it all. Love and Blessings sent your way!

heart
6 people hearted this

Comments

2 Comments

Meta Armstrong
By Meta Armstrong
Praying!!!!!
Rhinda Furtado
By Rhinda Furtado
I am praying for you Hannah and for your friend David. Love from Mrs. Furtado (Rhinda) and all the kids at my school