My Story

We have set up a foundation to help other families facing childhood cancer, Hannah's Gifts of Hope. Visit our website for more details on how you can help:

www.hannahsgiftsofhope.org

Hannah Grace was diagnosed with a brain tumor on May 16, 2008. She is two and a half years old. On June 2, 2008, we found out that the tumor was a very aggressive form of cancer called pineoblastoma. She will have to undergo six rounds of chemo therapy and possibly radiation and stem cell transplant. On June 4, 2008, she had surgery to remove to tumor, and , praise God, they were able to remove the WHOLE thing. At this point, she has no signs of residual tumor or cancer cells in her body. We are praising God for all of the wonderful things He has done for our family in this situation, and we are looking to Him for protection and guidance through the rest of our journey.

Update as of April 2009:

Hannah Grace has completed 5 rounds of high dose chemotherapy followed by an autologous bone marrow transplant.  Transplant went well with engraftment 10 days after transplant, then complications began.  Hannah Grace was admitted to ICU 2 days after reintroduction of her own stem cells due to shock from high dose chemo.  She was put on the ventilator 2 days after being admitted into ICU.  In total she was on the ventilator for 5 weeks and in ICU for 40 days.  Hannah Grace was diagnosed with VOD which attributed to acute liver, lung, and kidney failure.  At her peak she weighed 46.2 lbs in ICU, keep in mind when we came into the hospital for transplant she weighed 25 lbs.  The weight gain was due to fluid retention.  After being on dialysis and going through 9 days of plasma pheresis she began to get better.  Off of the ventilator and her organs recovering we were sent back to the stem cell unit then began a battle with pneumonia.  The doctors finally found the cause of her organ dysfunction and lung problems,  Hannah Grace was diagnosed with HHV-6.  It is a strain of Herpes virus that was reactivated due to her low immune system.  Treatments for 5 weeks helped the HHV-6 and we were released from the hospital on April 7, 2009.  We are at home with our little miracle in time to celebrate Easter.

Update October 2009:

October 14th 2009 Hannah Grace had an MRI of her brain and showed recurrence of disease.  Another MRI on October 16th showed the disease had spread to her spine.  We are in the fight again with radiation treatments and low dose chemo.  We will not lay down, we will fight with everything we have.  Your prayers are appreciated.

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Jarrod Harrison posted a new journal entry.

It is strange to think that a year ago we were in a strange place beginning a new phase of our journey with cancer.  We had moved to Houston to begin radiation treatments ... Read more

Jarrod Harrison posted a new journal entry.

I have to apologize for not updating. It has been almost a month again, but finding the words to post on here is very difficult most days.  We have been very busy in the ... Read more

Jarrod Harrison posted a new journal entry.

It has been almost a month since we updated.  I have tried so many times over the past few weeks to login and the words just seem to fail me.  I wish I could say that ... Read more

Jarrod Harrison posted a new journal entry.

So, Jarrod has been asking me for several weeks to update, and I just couldn't find the words.  The past six weeks have been the hradest of my life.  I would like to ... Read more

Jarrod Harrison posted a new journal entry.

Our time away alone has been a blessing for our family.  We have been in Tennessee for about a week and tomorrow will be making our way back home.  We spent two days in ... Read more

Jarrod Harrison posted a new journal entry.

How can a day such as today be summed up into words.  For such a precious life that was with us for what seems to be a short time.  Hannah Grace was with us here on this ... Read more

Jarrod Harrison posted a new journal entry.

We have an inscription on our wall in our living room that says this..."We do not remember days. We remember moments."Just as James 4 tells us.  Life is but a ... Read more

Jarrod Harrison posted a new journal entry.

Words cannot express the feeling of peace that we have been enveloped by since our precious daughter transitioned from this world into her eternal home.  Sorrow will ... Read more

Jarrod Harrison posted a new journal entry.

No Angel wings here...My daughter is safe in the arms of her loving Savior Jesus.An hour ago our precious Hannah Grace entered her eternal home with her renewed, restored, ... Read more

Jarrod Harrison posted a new journal entry.

I apologize for the lack of updates over the past few days.  The main problems that we are dealing with now are much different than the ones from earlier in the week.  ... Read more

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