×

Give a Tribute Donation

Help ensure no one has to face life’s most difficult journeys alone by honoring Hannah Grace with a donation to help CaringBridge reach our $1 million goal!

My Story

We have set up a foundation to help other families facing childhood cancer, Hannah's Gifts of Hope. Visit our website for more details on how you can help:

www.hannahsgiftsofhope.org

Hannah Grace was diagnosed with a brain tumor on May 16, 2008. She is two and a half years old. On June 2, 2008, we found out that the tumor was a very aggressive form of cancer called pineoblastoma. She will have to undergo six rounds of chemo therapy and possibly radiation and stem cell transplant. On June 4, 2008, she had surgery to remove to tumor, and , praise God, they were able to remove the WHOLE thing. At this point, she has no signs of residual tumor or cancer cells in her body. We are praising God for all of the wonderful things He has done for our family in this situation, and we are looking to Him for protection and guidance through the rest of our journey.

Update as of April 2009:

Hannah Grace has completed 5 rounds of high dose chemotherapy followed by an autologous bone marrow transplant.  Transplant went well with engraftment 10 days after transplant, then complications began.  Hannah Grace was admitted to ICU 2 days after reintroduction of her own stem cells due to shock from high dose chemo.  She was put on the ventilator 2 days after being admitted into ICU.  In total she was on the ventilator for 5 weeks and in ICU for 40 days.  Hannah Grace was diagnosed with VOD which attributed to acute liver, lung, and kidney failure.  At her peak she weighed 46.2 lbs in ICU, keep in mind when we came into the hospital for transplant she weighed 25 lbs.  The weight gain was due to fluid retention.  After being on dialysis and going through 9 days of plasma pheresis she began to get better.  Off of the ventilator and her organs recovering we were sent back to the stem cell unit then began a battle with pneumonia.  The doctors finally found the cause of her organ dysfunction and lung problems,  Hannah Grace was diagnosed with HHV-6.  It is a strain of Herpes virus that was reactivated due to her low immune system.  Treatments for 5 weeks helped the HHV-6 and we were released from the hospital on April 7, 2009.  We are at home with our little miracle in time to celebrate Easter.

Update October 2009:

October 14th 2009 Hannah Grace had an MRI of her brain and showed recurrence of disease.  Another MRI on October 16th showed the disease had spread to her spine.  We are in the fight again with radiation treatments and low dose chemo.  We will not lay down, we will fight with everything we have.  Your prayers are appreciated.

Feed

Jarrod Harrison posted a new journal entry, "2 years...".

Tomorrow at 10:00 am our precious Hannah Grace left her earthly battle leaving behind her tired worn body to enter into her eternal reward.  Hannah Grace is still one of ... Read more

Holly Barksdale signed Hannah Grace's Guestbook.

It is hard to believe how quickly time passes on this earth.  Hannah Grace was an inspiration to us and will always be with us in our hearts.  Your ... Read more

Sandy Daron signed Hannah Grace's Guestbook.

Hey my Precious ones,It is almost another year. Rarely a day goes by that I don't think of Hannah Grace. I know as much as I miss her...you miss her 100X ... Read more

Jarrod Harrison posted a new journal entry, "2 years...".

Tomorrow at 10:00 am our precious Hannah Grace left her earthly battle leaving behind her tired worn body to enter into her eternal reward.  Hannah Grace is still one of ... Read more

Jarrod Harrison posted a new journal entry, "A Time of Thankfulness...".

I know that it has been more than a while since we updated our CB page.  Our CB was such an integral part of our lives for so long to be able to share, vent, ask prayer ... Read more

Jarrod Harrison posted a new journal entry.

Thank you for all your kind words in our guestbook, e-mails, and calls we still receive from the family of individuals we have met since Hannah Grace started her journey ... Read more

Jarrod Harrison posted a new journal entry.

To think that 3 years ago this week our life was "normal".  I looked at pictures from Mother's Day 08 with Hannah Grace and Chandler sitting on Marci's lap.  ... Read more

Jarrod Harrison posted a new journal entry.

Hello, all! It has been a while since we have updated, but we really just don't know what to say most days.  We are doing pretty well.  We struggle every day to adjust ... Read more

Jarrod Harrison posted a new journal entry.

6 months...Six months ago today our beautiful daughter entered her eternal rest safe in the arms of Jesus.  I wish I had words to describe the depths of the emotions we ... Read more

Jarrod Harrison posted a new journal entry.

Happy Birthday Hannah Grace!!!!Five years ago today our lives were completely changed forever.  Marci started having contractions around 11:30 pm on December 7th and by 2 ... Read more

Jarrod Harrison posted a new journal entry.

The season that we are in brings much heartache with each day that passes.  Holidays are times that families use to spend time together and make memories.  We face this ... Read more

Show more recent activity