wow, didn't realize I hadn't sent an update in so long...seizure wise everyday changes with hannah...some days we don't see many and some days we see up to 12 or so....we can't find any kind of pattern and dont know if the new med is working or not...hard too tell...but she isn't sleeping hardly at all during the day...she normally sleeps  at least 3-4 hours in the day...that is one side effect of the med.
  respiratory wise she is getting thicker secretions in her trach, but I have had a lot of congestion too so hopefully it's the weather :)
  Nursing is not any better...patti's last day is aug 31.  we are tyring to work it out so mary and alice can do the 5 days.  angel does sat.'s.  the problem now is we have every friday night open.   Her nurses have tried to fill in but that is getting hard.  we are having some trouble with our nursing agency, please pray for that...so far, there is no nurse scheduled for this friday :(
our friend peggy painted Hannah's bedroom for an early bd present, it looks great!  A beautiful bright green that brings out all the colors in her bedding and curtains...can't believe in 1  week, my baby is going to be 14yo!   When she was born, I don't think they expected her to live her first year!   It's always interesting to see how God uses her.
  Chuck is on  a mandatory "vacation" next week, doing some things around the house...we would love to get away for the weekend but no nurse on friday night is going to make it impossible...please pray for that...we really need some couple time without being hannah's parents fora  change...
  I am excited, my sister pam is coming on the 4th for a few days...and hopefully the first week in august I will be taking my mom to FL to visit Pam...patti is going to be here with both girls for me...and taylor is really getting to be a handful :)  she is so busy and in to everything!  she is 10mo now!
thanks again for the continued prayers for us...it's hard watching her now but every once in a while, she lets us know she is still here :)
joan