My Story

Thank you for taking the time to read about our sweet angel. We hope to share our story with you to enlighten you about her disease, let you know you're not alone and keep our family and friends updated on her progress... we believe in progress, even slow coming!

Benefit Update: Great SUCCESS!!!

To find out how you help, please contact Becky Badder at 512-563-7237

Journal

Monday, June 29, 2009 8:39 AM, CDT


Little Haley is holding her own and showing improved signs!  I feel it was the right thing to do when we reduced her chemo and medications at this time.  Her "body" is ready to take over and heal and the chemo was getting in the way of that.  If that makes sense to anyone...

Her head looks good and there aren't any flare ups going on, which is wonderful.  Last week was her hard week and ours too.  I look forward to the days when we aren't up at the doctor so much and when the nights aren't affected by the chemo, steroids and IVIG.  She is having a harder time bouncing back during that week and since she's older, she's able to "express" herself more (I'll leave it at that)  LOL

Haley has been swimming a lot this summer since Dr. S said we could graduate to that level of activity.  Randy and I took the girls to our local pool Friday and had a blast.  Haley has been swimming all by herself with her wings on.  This is a HUGE accomplishment since she hates for her face and hair to get wet.  We are very proud of her. 

Haley continues to be a wonderful big sister to Rylea.  

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HOSPITAL INFORMATION

Specially for Children/ Dell Children's Hosptial in Austin, TX
1302 Barbara Jordan Blvd.
Suite 401
Austin, TX 78723
(512) 628-1900