Thank you for taking the time to read about our sweet angel. We hope to share our story with you to enlighten you about her disease, let you know you're not alone and keep our family and friends updated on her progress... we believe in progress, even slow coming!
Benefit Update: Great SUCCESS!!!
To find out how you help, please contact Becky Badder at 512-563-7237
It is early Saturday morning and Rylea has been playing since 5am in my tummy, so I thought I should just get up and catch up on some emails and how Haley is doing.
First, I would like to inform the world that my professional career has been put on hold... the decision was finally made to put Haley and Randy first and stay at home. I tried very hard to work full time and rely on the help of my parents and Kim and Larry, but my heart was just not being fulfilled. I also have learned that employers are not as understanding as some would think they SHOULD be. Enough said. So, it has been 2 weeks since my alarm clock has gone off for work and 2 weeks since I've had to leave Haley's side!
Haley had a little flare up, which resulted in her receiving MTX last week- a week early. She is scheduled for a CT scan, bone scan and x-rays on Monday at . Tuesday she will get an IVIG and also receive Solumedrol (steroids) on Tues, Wed and Thurs. And to add to the mix, I will have steroids two days next week to help encourage Rylea's lungs to develop. This is just precautionary.
Haley LOVES her big girl bed and is talking up a storm. I don't think I really realized how smart she was until now that we spend all day together. Wow is all I can say. She brings such joy to my heart and now I wonder why it took so long to just trust God and stay home with her. I say that even more now looking back at all the grief I was given when I had to miss work. How stupid of me to think sitting behind a desk fixing the problems of the world was more important than being with my own daughter. I am thankful that things worked out the way they did and I woke up!
Haley went to the allergist this week and is definitely allergic to shellfish. The doc gave her an epi-pen for emergencies.
Well, my time on the computer is over. Randy just got home and it is bed time for him and the start of my day with Haley. I will try to do a better job at keeping you all informed.
For the record, I really miss Adrienne, Carole and Erin from work and hope to stop by the Center and see them soon. I only have 4 more weeks until Rylea is here, so I will need to plan to see them before my life become even more filled with the love of little girls!
