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My Story

Hailey was born on September 14, 2005 with 3 congenital heart defects, Coarctaton of the Aorta, VSD and Aortic Stenosis.  She has had an OHS in 9/2005, a cath 10/2005, a cath 1/2009, OHS 5/2009, a cath 4/2013 and is set for another open heart surgery to replace her aortic valve on August 5, 2013.

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Heather Norman posted a new journal entry, "2 weeks post op".

Tomorrow marks 2 weeks since Hailey had OHS #3 and we are on our way to finding and feeling normal. It is a wonderful feeling!! Last week we met with her surgeon, Dr. ... Read more

Heather Norman added a new photo.

Heather Norman posted a new journal entry, "Did Hailey have surgery a week ago?".

Oh that's right I remember now and I have gray hair to prove it. Hailey is doing so much better since being home. She is eating, taking meds like a pro and moving around ... Read more

Heather Norman added a new photo.

Heather Norman added a new photo.

Heather Norman added a new photo.

Heather Norman added a new photo.

Heather Norman posted a new journal entry, "Wellll".

Wellllll, I could tell in Hailey's voice this AM that things were better for her but then more tubes and lines came off of her and more drugs were pushed so while things ... Read more

Heather Norman added a new photo.

Heather Norman posted a new journal entry, "Progressing ".

So the last 24 hours have been busy. I know I won't be able to fully update but yesterday Hailey spent most of the day out of it from the pain medicine. She was either ... Read more

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