My Story

Hailey was born on September 14, 2005 with 3 congenital heart defects, Coarctaton of the Aorta, VSD and Aortic Stenosis.  She has had an OHS in 9/2005, a cath 10/2005, a cath 1/2009, OHS 5/2009, a cath 4/2013 and most recently had a two valve replacement via the Ross Procedure on 8/5/2014.

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Heather Norman posted a new journal entry, "Cardiology update ".

Well I have fantastic news on this 3 week anniversary of Hailey's OHS#3. First I will start by saying Hailey is doing wonderful! She even made the comment that she feels ... Read more

Heather Norman posted a new journal entry, "A Mother's Perspective".

I found this poem on a CHD Mom's Blog. There is so much going on in the CHD world for the families that we are friends with, love and follow closely.  While I have read ... Read more

Heather Norman posted a new journal entry, "2 weeks post op".

Tomorrow marks 2 weeks since Hailey had OHS #3 and we are on our way to finding and feeling normal. It is a wonderful feeling!! Last week we met with her surgeon, Dr. ... Read more

Heather Norman added a new photo.

Heather Norman posted a new journal entry, "Did Hailey have surgery a week ago?".

Oh that's right I remember now and I have gray hair to prove it. Hailey is doing so much better since being home. She is eating, taking meds like a pro and moving around ... Read more

Heather Norman added a new photo.

Heather Norman added a new photo.

Heather Norman added a new photo.

Heather Norman added a new photo.

Heather Norman posted a new journal entry, "Wellll".

Wellllll, I could tell in Hailey's voice this AM that things were better for her but then more tubes and lines came off of her and more drugs were pushed so while things ... Read more

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