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  • Written Apr 28, 2010 6:30am

    Today, April 28th, marks one year off treatment.  If you are looking for a reason to celebrate, this is a good one. 

     

    You see, the chances for relapse drop significantly after 1 year.  The chance is still there, but today it becomes lower - and that’s what remission is all about, keep reducing the chance that Haidyn will have to beat Leukemia again.

     

    So today is a pretty bad day for Leukemia.  Pardon us if we don’t give it much sympathy.

  • Written Apr 9, 2010 4:55pm

    Today was a sad day – for Leukemia :o)

     

    Haidyn had her last monthly checkup.  These checkups consist of a blood test to confirm counts are good and this 12th one also had an ultrasound of her heart to confirm all is well there. That chemo she took for 27 months can cause issues and they need to make sure everything is in working order.

     

    All is well and now Haidyn moves to checkups every 3 months for the next year.  Which means 2/3rds fewer trips to UNC, 2/3rds less blood tests,  2/3rds less impact to her – because she’s got more important things to do – like nag Kenna and I twenty-four hours a day for an American Girl doll.  She is showing the same stamina for that doll as she did for fighting Leukemia !!!

     

    Another milestone passed. 

  • Written Mar 31, 2010 9:42pm

    It is funny how something that was such a big part of our lives, is now something that we have drifted so far from day to day.  I was thinking about this site when I first started to write that, but really the whole Leukemia fighting thing is similar. We used to check this site everyday, updating it sometimes multiple times a day when Haidyn was going through a rough patch. And of course, we would think about Leukemia non stop – especially when times were tough.  So I guess we should be glad that this has become a once a month thing…. No news is good news when your child has beaten cancer.

     

    You might remember last year Haidyn participated in the Leukemia and Lymphoma Society’s annual Man and Woman of the Year Campaign.  (where 10-12 men and women ‘compete’ to see who can raise the most money in 10 weeks, the winners being crowned man/woman of the year).  Haidyn’s role was of the Girl of the Year.  The men raised money in her honor and she was the face (along with the Boy, Charlie) of the campaign.  Last year the group raised over $100k and at the grand finale, a set of paintings that the kids had created auctioned for about $3k and then spontaneously the crowd started throwing in extra dollars and those paintings brought in a little over $5,000.  I can honestly say it was one of the most energizing things I participated in.  To see all that dislike for Leukemia in one room was amazing.  In the end, the Winner was every person battling Leukemia.

     

    After enjoying ourselves so much, and making some terrific friends in the process, when the planning stage for the Campaign came around again – we asked if Haidyn could be the Girl of the Year again. Since there probably wasn’t any precedence, and there probably weren’t any rules against some crazy family signing up twice – Haidyn is now the LLS Girl of the year. Again. 

     

    I bet Leukemia hates that….

     

    So we will attend events and hopefully participate in some fun fundraisers and generally use this opportunity to get back at Leukemia for putting Haidyn through all the nonsense she dealt with.  And we’re going to have fun at the same time.  I believe they call that a win-win.

     

    Here is a link to the list of candidates.  http://www.mwoy.org/nce/   These people truly deserve a round of applause.  What they are doing is not easy and it is really making a difference.

     

    There is also a link to the LLS Staff, who we have become big fans of.  They relentlessly fight for people just like Haidyn.  Hats off to them - they are changing lives for the better.  I am honored to call them friends.

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