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Gwyneth’s Story

Gwynn was diagnosed with Churg Strauss vasculitis In March of this year. She is currently receiving chemotherapy and high doses of steroids in hopes to put the disease into remission. Churg Strauss is a very rare disease and is incredibly rare in children.

Since being diagnosed Gwynn has been treated with several chemotherapy medications and large amounts of steroids in hopes of putting the disease in remission. Despite aggressive treatment Gwynn's disease is still not under control. We have begun to exhaust treatment options and Gwynn's doctor based on advice from a specialist at the Cleveland Clinic is currently requesting the insurance company allow us to treat Gwynn with Orencia which to date has never been used to treat Churg Strauss.