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Guy’s Story

I have been diagnosed with multiple myeloma, and, on this site, I will provide updates as I have them.  I will also treasure messages of encouragement and promises of prayer. I am trusting the words of Juliana of Norwich:

God did not say: You will not be troubled, you will not be belabored, you will not be disquieted; but he said: You will not be overcome.  God wants us to pay attention to those words and always be strong in faithful trust, in well-being and in woe, for he loves us and delights in us, so he wishes us to love him and delight in him and trust greatly in him, and all will be well. . . . [The Lord says most comfortingly]: I may make all things well, and I can make all things well, and I shall make all things well, and I will make all things well; and you will see yourself that every kind of thing will be well.




Latest Journal Update

Treatment and Delay

Last Thursday, I had another infusion of a Zometa, the drug which prevents and treats the bone damage which Multiple Myeloma can cause and which seems to have some effect on the cancer itself.  As happened a month ago, when I had the first infusion of this drug, I had about four days of flu-like pain and fatigue. This past Monday, I went to Duke to see my transplant oncologist for a three month post-transplant checkup.  I am doing well in most ways, but some of my blood counts were lower than is optimal for starting the oral chemotherapy which was scheduled to begin this week. It's likely that I will add that drug to my treatment regimen in a couple of weeks, after my counts have had a chance to recover.

No one is alarmed by the counts or the delay.  Fluctuating counts are not uncommon this soon after transplant; and, overall, the trend of my recovery is toward increasing health and vitality.  I am very grateful. 

I am also aware that I have to do what I can to support my recovery. For the most part, that means getting more rest. It has been important to me to be back at work. I love our church, and I knew that my resignation would mean that my remaining time as pastor would go by quickly. By my own choices, I have, for the most part, resumed my pre-transplant pace and patterns--not my wisest choices. Apparently, the transplant didn't replace my Type-A temperament and deeply-grooved workaholic habits, anymore than it made me an extravert instead of an introvert! 

So, "Frank" (my nickname for Multiple Myeloma) is teaching me yet again: he is demanding that I live and work within more reasonable and sustainable limits. I am a remedial student at best, but I know it matters that I "get it" in ways I haven't in the past. I will get tutoring from Jesus, a decidedly better teacher than Frank, who said: "Come to me all you labor and are carrying heavy burdens, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart and you will find rest for your souls."  Real rest is about far more than not working; it is about letting the will and way of Jesus shape our living so that it is in harmony with his wisdom, compassion, and peace.

One of Jesus' better students, Julian of Norwich said: "We seek rest where there is no rest and therefore are uneasy. God is the True Rest who wants to be known. God finds pleasure in being our true resting place.” 
 

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Comments

11 Comments

James McCoy
By James McCoy
I recognized that type A personality. However, I finally conquered my demons and have laid type-A to rest. Don't overdo it, but do what you want when you want after an examination of conscience. You inspire those of us who are not going through what you are going through.
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rus roach
By Rus roach
From a fllow pastor in nashville..pace yourself...or rather accept the new pace that is given to you....fatigue is just paet of this monster that we share....i have never had the zometa reaction that you have had...sorry...maybe it will improve...there are lots of options out there...pastor your people but them care for you also....God is still good and in control. Blessings on this journey...
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Krista Wilson
By Krista
Peace, love and rest to you, teacher and friend.
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Kara Kelley
By Kara Kelley
Thank you...a gentle reminder to us all...a note of rest upon a melodied soul...
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Betsy Warren
By Betsy Warren
Also, of course, "All shall be well, and all shall be well, and all manner of thing shall be well."

(I love knowing you are a fellow introvert in an extroverted world. Quite a dance, no? Deep peace to you, Guy Sayles.)
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Robbie Angell
By Christ's love, Robbie
Now that Frank is in remission, the constant medical requirements will become routine, and this combination is urging you to embrace a slower, but purposeful life. Resting the body while the head cogitates on ideas, thinks through ways to implement and share them, as well as contemplation of how a different life style will be good, I think this is a special combination that can be a productive place in which a Type A Introvert will soar!
No one chooses negative circumstances as a method for making life better. It seems that there is a community of people joined together with one common dominator...we did not chose to make major life changes, but we are sharing a journey of searching for God's will regarding what's next for us. We have a new perspective on life, and our struggle is as Mary Oliver said we must look for a plan for this "one wild. crazy life."
I would assert that anyone facing major life style/career change is also experiencing the grief of missing the joyful things in our old life. Even in deeply sad moments, we have the promise that "God has a plan for us for our good." I wonder why He's not giving us the outline as we struggle?
Prayers for you and Anita as you find your way to different challenges in answer to God's call.
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Sue Wright-Barron
By Sue Barron
Do what you WANT to do. That helps heal your mind and body, reduces stress, and is a lot more fun and comforting. You do not need be out of harmony with your healing body. It is the only one you get here on earth. As it heals more and more, you will enjoy it more and more.
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Bea Clark
By Bea Clark — last edited
Work on diminishing those "workaholic habits." Love you!!!!!
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Kathleen Osta
By Kathleen
Here's to your "getting it" to rest and that it sticks. Thank you for posting these updates. It's always wonderful to hear how you are doing.
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Una Mullis
By Una
You are always in my prayers for finding the peace and rest you have so generously given to others for so many years.
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