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Total Entries: 44
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  • Written Sep 18, 2012 8:53pm

    Please keep Grant in your prayers. We will be leaving early in the morning heading to UNC Chapel Hill for his 2nd attempt with a Tympanoplasty to help repair his eardrum and hoping to restore his hearing! I will try to update as soon as I can. Any extra prayers would be greatly appreciated! Thank you all!
  • Written Aug 21, 2012 3:21pm

    Sorry I have not updated in a long while.  We have been having a very nice summer.  We have been to the Gulf of Mexico for a week, Alabama a few times and Surfside Beach for a few days.  Grant’s last infusion lasted LONGER than any we have had so far!  We were thrilled.  He has started Mixed Martial Arts and absolutely LOVES IT!  He is now a Yellow Belt with 2 stripes and has had a Birthday and is a big 12 year old!  <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />

    Grant started feeling a little run down 3 months after the infusion which would have been May.  We started checking his levels and they finally dropped pretty low in July.  We got his infusion arranged and received on Tuesday August 14, 2012.  His infusion went pretty well and was ran a little faster than what we were used to.  At the last ramp up he started having tightness in his chest and having a hard time breathing.  They turned it down a little and it immediately got better.  Came home that evening and he slept really well and felt pretty good up until around lunch time Wednesday.  He started with a migraine and it very quickly got out of control, we maxed out on his Imitrex, he started with a fever, so after speaking with the Dr. we were headed to the ER around 11pm.  Thank goodness the on call Dr. called ahead to the ER and they were waiting on us.  They took us straight back to a room.  By this time Grant could not stand ANY light so he kept his blanket wrapped around his head.  They gave Ibuprofen to get his fever down some and then decided to give IV fluids, Zofran and decided on Morphine for the migraine.  He immediately started throwing up and the pain got worse and worse.  They did a lot of blood work, checked his urine and got a chest x-ray.  We even discussed the possibility of meningitis due to the fever and the severity of his migraine but decided to wait on the Lumbar Puncture.  They decided to admit him and we were finally taken up to 3North about 6am.

    Once up stairs they tried one more dose of Morphine and after he vomited again they changed it to Toradol.  They were able to get his pain, vomiting, and fever under control and he slept all day Thursday.  As long as he was still and quiet everything was good but when he had to get up to go to the bathroom he said it felt like a knife was stabbing him in his head.  The nurses and Doctors took such great care of Grant and me!  We finally felt after he began to eat and drink a little that we could go home Friday evening.  Grant is still running close to 102 temp, will only go down to 100 with 400 Ibuprofen and get a dull headache in the evenings.  He is not eating and drinking that much either.  I am waiting on a phone call from his Pediatrician now.  Praying that it was just a severe reaction and it is taking him longer to get over it this time…I don’t know, does a mom ever stop worrying?!

  • Written Feb 15, 2012 8:50pm

    Grant had a rough few days after his infusion as usual.  But we have gotten through it and made a trip back home to Manning which did us all some good I think! 

    Please say a little prayer for us tomorrow as we travel to UNC Chapel Hill to have a consult with an Otolaryngologist (sp) about Grant's ear.  I am hoping and praying that he will have some options for us to restore his hearing!  I will update as soon as I can! 

    Thank you for all of the Love and Support!

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