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Gracelyn’s Story

Gracelyn is 11 years old and has Cystic Fibrosis. She was diagnosed when she was 2 years old. Gracelyn is a strong willed fighter.. As of October 4th 2013, Gracelyn has had her lung transplant!

Latest Journal Update

March 23rd

We arrived home this past weekend. Gracelyn is doing good. She is still in some pain from where her chest tube was and her incision is. She is unable to carry anything heavy and is still a little worn out. So, she is going to stay home from school.

I don't know how long we can keep her home. She is excited to see her friends and get back to normal.

To clarify the info of the medication she is now on, it doesn't reverse the rejection, it just slows it down, (hopefully!!)

I am so worried about my baby girl. I wish I could afford to be at home with her everyday to take better care of her. :-(
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2 Comentarios

Dick and Addie Sarkela
By Addie
Linzi -- thanks for trhe update. You came home to snow! How is that working out for you? I know. . .home is the best place to be, even if it includes snow. And I'm home because I broke my ankle! This will be a long ordeal, hoping I can get a shoe on my foot and put down full weight by July 4. How's that for a goal?

Together we can offer our prayers to God, knowing He takes pleasure in them. And, the more we pray the mroe answers we can receive! And best of all, our faith is strengthened when we see how precisely He responds to our specific prayers,. Isn't it amazing how much He loves us? Hugs all around the Van gorden family!!!
Mary Jacobson
Gracelyn is in my prayers daily. Prayers for complete healing, strength and that her body accepts her new lungs as her own. Also, prayers continue for all of you for peace, wisdom and strength.
1 person hearted this