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Gracelyn’s Story

Gracelyn is 11 years old and has Cystic Fibrosis. She was diagnosed when she was 2 years old. Gracelyn is a strong willed fighter.. As of October 4th 2013, Gracelyn has had her lung transplant!

Latest Journal Update

October 25th

Gracelyn had a rough evening and night.


They put a PICC line in upper arm since she'll need this med for 10 days. She was very sore at the site and is hooked up to every monitor you can think of so, it's uncomfortable for her to move around.




She tolerated the med well, no side effects so, they are moving her out of ICU and to a regular floor soon.




She feels better today, just tired. You don't get any sleep with you are in the ICU.




She is on 3 days of a high dose of steroids and it's giving her very high blood sugars. So, she is upset about that because that means more insulin. Boo




They did mention leaving the hospital Monday or Tuesday after she had an appointment to test her PFT's. Then going back to MN. There is a possibility that she can do the remaining doses at the infusion center at Childrens and not have to be admitted. I sure hope that happens so she doesn't miss trick or tricking next week. She was very exciting to celebrate Halloween at our new house.
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Comentarios

3 Comentarios

Dick and Addie Sarkela
By Dick and Addie Sarkela
Linzi -- thanks so much for keeping us in the loop. Give Gracelyn a big hug from us and let her know we are praying for her.
Cindy Burrington
By
yay! I am praying for no insulin and Minnesota trick or Treating. What are you going to be, Gracelyn? You'll have to post a picture.

Take care!
Love,
Mrs. Burrington
xoxoxo
sharon knaup
By Sharon Knaup (Mrs B's Mom)
You are a 'tough cookie' Gracelyn! Never crumble and never give up on a dream!!