Gracelyn’s Story

Gracelyn is 11 years old and has Cystic Fibrosis. She was diagnosed when she was 2 years old. Gracelyn is a strong willed fighter.. As of October 4th 2013, Gracelyn has had her lung transplant!

Latest Journal Update

March 23rd

We arrived home this past weekend. Gracelyn is doing good. She is still in some pain from where her chest tube was and her incision is. She is unable to carry anything heavy and is still a little worn out. So, she is going to stay home from school.

I don't know how long we can keep her home. She is excited to see her friends and get back to normal.

To clarify the info of the medication she is now on, it doesn't reverse the rejection, it just slows it down, (hopefully!!)

I am so worried about my baby girl. I wish I could afford to be at home with her everyday to take better care of her. :-(