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Gracelyn’s Story

Gracelyn is 11 years old and has Cystic Fibrosis. She was diagnosed when she was 2 years old. Gracelyn is a strong willed fighter.. As of October 4th 2013, Gracelyn has had her lung transplant!

Latest Journal Update

March 4th

Gracelyn is out of her bronchoscopy and is doing great. She is still trying to fully wake up so we can go home.

Dr Wheeler said he didn't see anything in her lungs that would make him think she has a fungal or bacterial infection. There was no swelling, no redness and no

mucus. However, only the lab results will be able to tell for sure.

He did notice her small airways are narrowed , giving a reason for the low PFT's. But he can't tell by looking at her lungs if there is any sign of rejection. He did say it might be rejection that is causing all of this but there is no way to tell until Texas does the biopsy. I am very thankful he doesn't think it's an infection, now just back to the normal worrying about rejection.
8 people hearted this



joni ekberg
By joni ekberg
Gracelyn, you are adorable !
Rick Lee
By Rick Lee
Good news Gracelyn! Keep kickin butt!
1 person hearted this
Dean O'Brien
By Dean O'Brien
That is great news. Every step forward is progress.
1 person hearted this