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Gracelyn’s Story

Gracelyn is 11 years old and has Cystic Fibrosis. She was diagnosed when she was 2 years old. Gracelyn is a strong willed fighter.. As of October 4th 2013, Gracelyn has had her lung transplant!

Latest Journal Update

Gracelyn's body is rejecting her lungs

We just left the clinic after talking with her lung doctor. They said the biopsy results are back and her body is rejection her lungs. There is ways to treat this and try and stop it.

Gracelyn is going to be admitted to the ICU shortly at Texas Children's. They are going to start her on a medication and a strong dose of steroids. This medication has some bad side effects so they want her monitored closely. The medication is once a day. If she is ok after 3 doses then, we can fly back to MN and finish the 7 other doses at Children's hospital as an inpatient.

She is only upset because she is going to miss a few Halloween parties this weekend. Otherwise, she is in good spirits and wants to get better.


I will keep you updated as to how she is doing when she gets the first dose.
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Comments

9 Comments

Steve Johnson Family
By Steve Johnson Family
Praying for Gracelyn!
Diana Vera
By
Prayers from Colombia, in English and Spanish :(
Hope she gets better very soon.
Mary Yapp
By Mary Yapp
Hang in there Gracelyn and mom! Prayers are being sent your way for healing and patience.
Kim Cain
By Kim Cain
I am sorry to hear Gracelyn is having to go through another hospitalization. I was hoping for better news today. 😔 We continue to keep Gracelyn in our thoughts and our prayers. Praying all goes well in Texas and you both to be back home soon! 😊 Lots of love and hugs sent your way!!! Good luck and God bless.
Jennifer Johnson-Darrington
By Jen
Oh no! I'm so sorry! I will pray for her and you and all of her doctors and nurses that will be caring for her. She is so strong and such an amazing little girl. Thinking of you Linzi.
Kristy Weisser
By Kristy Weisser
I'm so sorry Linzi. Thinking of you guys, and hoping that you can come home soon!
Krista Foley
By Krista Foley
Thinking of you all.. What crushing news to receive! Gabby went thru rejection this spring, but responded very well to the medication and is now doing good! I hope things go well for you all!
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Melissa Thompson
By Melissa Thompson
Oh no :'( I'm so sorry to hear this! I will pray for her to get well.
Westrup Family
By The Westrup Family — last edited
Oh gosh, we have been praying for you all. Sorry to hear this news...hope the meds are helpful and you can get back home soon. Prayers continue!!
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