Well, two milestones accomplished this week - Andy is back home from Japan and back in school this morning, and Gerry is back at work!
Gerry and I flew out to California a few days ahead of Andy's return; we had promised ourselves a little time away together when treatment was over, and this seemed like the right time to do it. We had a really nice time - his swallowing improved dramatically while we were out there, and he actually started eating 'big boy food' again. The throat is still awfully sore, but no longer paralyzing, and he's not aspirating food and liquids like he was. So - we really are seeing progress.
Except for being really thin and beardless, he actually is starting to look pretty healthy. The feeding tube has to stay in as long as he's still losing weight, but this week he actually gained a few pounds - so maybe we can start thinking about taking it out.
He's continuing the cetuximab - the trial drug that produces the terrible rash - which has just made its reappearance. That treatment is once a week for about six months - five more to go. And of course, regular check ups with all the doctors to keep on top of things.
But last night, all four of us were gathered around the dinner table - giving thanks for being back together. Andy looks great - also thin! - but happy, glad to be home, and eager to get back into friends and school. MJSA has been wonderful and supportive through this ordeal and Gerry was happy to be back at work. I feel like maybe I can take a deep breath at last...
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