Georgia’s Story

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My Story is the introduction to our CaringBridge site.

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My name is Georgia, I am 7yrs of age. I was diagnosed with a Diffuse Intrinsic Pontine Glioma on the 15th June 2008.

Just beore leaving for school Georgia shouted "mum I can see two of everything out of my eye"  Georgia could see two of everything out of her left eye. She was not dizzy, or ill. 

"We will call into the optometrist and get them to have a quick look at your eye beore you go to school."

Georgia loves playing Australian Football and plays with a mixed team for the Sharks. She played on the Sunday then complained of double vision out her left eye the next day. I thought she must have had a knock to the head as it can be a full on game even at this age. Off we went to see the optometrist. Not a thing was seen so we booked an appointment with our G.P. We could not get into the GP until the end of the week,  I was uneasy with that. 
 Fortunatley that evening I went to work, I am a nurse in the operating room. I was in he theatre where the neurosurgeon was working. We had a chat. Her face said it all. "Dont leave that Maggie" she said and she arranged for me to see an opthamolist the next day. Still nothing was seen but the opthalmologist booked an MRI for the next day. By this time I was not worried as there was no evidence that anything was wrong and nobody else seemed worried and the majority of brain tumours you have idea of before the MRI and we had nothing to suggest any problems.
During the MRI I new something was wrong. Lots of people kept coming and going and we were in their for nearly one and a half hours. Georgia did so well to stay in the scanner for that length of time. When we came out of the MRI machine,  the radiologist said you need to go straight back to the opthlamologist I have seen something. I did not ask I just picked up the MRI scans and walked out. I never looked at the MRI I just left it in the packet. Georgia asked me what we were doing as she was keen to get back to school I just looked at her so innocent, no idea of the impending doom we had to face. I was numb and not sure if I could get to the opthamologist clinic. I felt ill and confused.  Deep down I new it was bad.
 Driving around for ages not knowing where or what I was doing. My husband and the Dr were getting very worried about Georgia and I.  We eventually made it to the Drs rooms, where he told us the news. We were devastated our daughter a brain tumour you must be wrong. Its something you read about in magazines that cant be right. "Where is it I asked," in the Pons was the reply from the Dr.  I new this would be a nightmare "what!"  I screamed "are you sure?  it cant be." " Its a bloody disaster in the Pons " I shouted. Its in the worst area you can get one. I immediatley began to feel sick,  cry,  and make lots of quiet screaming noises as our daughter was playing with toys in the waiting room outside the door.   I didnt want her to hear me. We were in total shock. My husband was pale and numb and said nothing, just in total shock.  It took our family many weeks to get to grips with this diagnosis.  The more we searched for medical miracles the more we realized we need that miracle.  DIPG is the worst tumour you can ever imagine. Sitting there happily in the brain stem vertually untouchable. At the moment we are symtom free as Georgia ended her treatment 4th Sept. She endured 6 wks of radiation treatment with a sensitising agent to make the radiaition more effective.   We read many of the other DIPG stories on the caringbridge website and we are aware of what can happen to our daughter and our family.
 Georgia has a 10yr old brother called Aaron who is a quiet boy but Aaron and Georgia play with each other constantley.  He has an idea things are going to be hard.  The other day he said "Georiga is a good sister, she is going to be okay mum isnt she?" " Georgia isnt going to die is she?"  I stood their in disbeleif and said  " We dont know whats going to happen  darling but we are all going to do our best for Georgia. "

Thats our story. Please leave messages if you need to.




Latest Journal Update


Do not often put things out these days. Christmas is the hardest time of the year for e anyway, I am sure I am not alone.  It will be 6years since Georgia left soon January and I just do not know where time has gone. They say time is great healer that is not so. It may heal some things but never a broken heart.

We all still plod on. I have looked at many sites today the ones that travelled with us around the globe all fighting mums and dads with one one aim. Here we are now still fighting . Fighting grief, and many of us are still looking for other families for that illusive cure or D.I.P.G . I think that keeps us all going.

I wont ponder too long one of our TV hosts her husband died of a brain tumour and she is organising a massive brain tumour day on the 6th o December. I am going log into her site and try and get involved. If anyone wants to join me I will let you now what I am planning.

Love to you all.


10 people hearted this



Kim Vaughn
By Kim Vaughn
I continue to think of your family and pray for you guys. I remember Georgia and can't believe it's coming on 6 years. Sending you guys much love from Michigan. ♥
Joan Gillespie
By Joan Gillespie glad to see your post.....since facebook has become so popular I am not able to keep up with many of the families of the
dipg children that I followed when Gunner was dx. As you said, time does go on but it does not heal a broken heart. Our family will always have a saddness of missing Gunner as you will with Georgia. Think of you often ..........Gunner's Meippy
1 person hearted this
Ruth Warner
By Ruth Warner
Thoughts and prayers for you today. You are in my thoughts often.
Kathy Jo Stuva
By Kathy Jo Stuva. Springfield, Illinois
Praying for u Maggie