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Georgia’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

My name is Georgia, I am 7yrs of age. I was diagnosed with a Diffuse Intrinsic Pontine Glioma on the 15th June 2008.

Just beore leaving for school Georgia shouted "mum I can see two of everything out of my eye"  Georgia could see two of everything out of her left eye. She was not dizzy, or ill. 

"We will call into the optometrist and get them to have a quick look at your eye beore you go to school."

Georgia loves playing Australian Football and plays with a mixed team for the Sharks. She played on the Sunday then complained of double vision out her left eye the next day. I thought she must have had a knock to the head as it can be a full on game even at this age. Off we went to see the optometrist. Not a thing was seen so we booked an appointment with our G.P. We could not get into the GP until the end of the week,  I was uneasy with that. 
 Fortunatley that evening I went to work, I am a nurse in the operating room. I was in he theatre where the neurosurgeon was working. We had a chat. Her face said it all. "Dont leave that Maggie" she said and she arranged for me to see an opthamolist the next day. Still nothing was seen but the opthalmologist booked an MRI for the next day. By this time I was not worried as there was no evidence that anything was wrong and nobody else seemed worried and the majority of brain tumours you have idea of before the MRI and we had nothing to suggest any problems.
During the MRI I new something was wrong. Lots of people kept coming and going and we were in their for nearly one and a half hours. Georgia did so well to stay in the scanner for that length of time. When we came out of the MRI machine,  the radiologist said you need to go straight back to the opthlamologist I have seen something. I did not ask I just picked up the MRI scans and walked out. I never looked at the MRI I just left it in the packet. Georgia asked me what we were doing as she was keen to get back to school I just looked at her so innocent, no idea of the impending doom we had to face. I was numb and not sure if I could get to the opthamologist clinic. I felt ill and confused.  Deep down I new it was bad.
 Driving around for ages not knowing where or what I was doing. My husband and the Dr were getting very worried about Georgia and I.  We eventually made it to the Drs rooms, where he told us the news. We were devastated our daughter a brain tumour you must be wrong. Its something you read about in magazines that cant be right. "Where is it I asked," in the Pons was the reply from the Dr.  I new this would be a nightmare "what!"  I screamed "are you sure?  it cant be." " Its a bloody disaster in the Pons " I shouted. Its in the worst area you can get one. I immediatley began to feel sick,  cry,  and make lots of quiet screaming noises as our daughter was playing with toys in the waiting room outside the door.   I didnt want her to hear me. We were in total shock. My husband was pale and numb and said nothing, just in total shock.  It took our family many weeks to get to grips with this diagnosis.  The more we searched for medical miracles the more we realized we need that miracle.  DIPG is the worst tumour you can ever imagine. Sitting there happily in the brain stem vertually untouchable. At the moment we are symtom free as Georgia ended her treatment 4th Sept. She endured 6 wks of radiation treatment with a sensitising agent to make the radiaition more effective.   We read many of the other DIPG stories on the caringbridge website and we are aware of what can happen to our daughter and our family.
 Georgia has a 10yr old brother called Aaron who is a quiet boy but Aaron and Georgia play with each other constantley.  He has an idea things are going to be hard.  The other day he said "Georiga is a good sister, she is going to be okay mum isnt she?" " Georgia isnt going to die is she?"  I stood their in disbeleif and said  " We dont know whats going to happen  darling but we are all going to do our best for Georgia. "

Thats our story. Please leave messages if you need to.

Maggie&Richard

 

 

Latest Journal Update

5 years on

We have been on holiday, so didnt get computer accsess. Five years since Georgia passed away. Where does time go.We did a balloon release and had many happy memories of Georgia. Time waits for nobody.We still have our moments but we have turned a corner. Every now and again you go on the guilt trip over some daft things really but they are things that are in your heart. I dont think a true broken heart ever heals and when you lose a child it is truly a broken heart.
Ive put the fireworks up as here in "OZ" on 26th January its Australia day so its big celebrations. Its my birthday tomorrow 21 at heart about 90 in body but 52.....
I want to wish everyone a better New Year and a wonderful Australia Day.
Anyone wanting to run HBF in May im getting a team together again... Yes push our bodies to limit again girls.....
Love to you all.
Maggie




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Comments

6 Comments

Michelle Burgess
By Michelle - Angel Ethan's Mom
Georgia will always have such a special place in my heart. I can hardly believe that it has been 5 years. Sending you hugs and love.
Sandy Smith
By Sandy Smith
Much love Maggie!
Libby  Lee
By Libby
We will always always remember Georgia - she is unforgettable! and I have been trying to contact you to catch up Maggie, Happy 21st my friend, may the year ahead be beautiful.

Libx
Kathy Bohannon
By Kathy
Keeping you in my prayers, 5 years it doesn't seem real.
Kathy Bohannon (Russell's mom)
Kim Vaughn
By Kim Vaughn
Happy Birthday to you, Maggie! I hope your day is filled with smiles, sweet moments and signs from your gorgeous girl. ♥ It sounds like you had a beautiful balloon release for Georgia. It is hard to believe 5 years have gone by. I'm grateful things are getting a little more hopeful, a little easier to manage...you guys always did what you felt was best for Georgia, and always surrounded her with love. I know a part of your heart will always be with her - she's always missed and loved! I'm praying that you are continually strengthened and that this new year brings many wonderful moments and happy memories for you all! Sending hugs from Michigan (USA). ♥
marina richardson
By marina richardson
Hi Maggie et al. Glad to hear you are turning a corner. Georgia will always be in your heart and memories. You try and have a great birthday you old bird!!!! Take care of yourself and once again have a lovely day. Xxxxxxx