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Make Sure Georgia Is Not Alone This Holiday Season

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Georgia’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

My name is Georgia, I am 7yrs of age. I was diagnosed with a Diffuse Intrinsic Pontine Glioma on the 15th June 2008.

Just beore leaving for school Georgia shouted "mum I can see two of everything out of my eye"  Georgia could see two of everything out of her left eye. She was not dizzy, or ill. 

"We will call into the optometrist and get them to have a quick look at your eye beore you go to school."

Georgia loves playing Australian Football and plays with a mixed team for the Sharks. She played on the Sunday then complained of double vision out her left eye the next day. I thought she must have had a knock to the head as it can be a full on game even at this age. Off we went to see the optometrist. Not a thing was seen so we booked an appointment with our G.P. We could not get into the GP until the end of the week,  I was uneasy with that. 
 Fortunatley that evening I went to work, I am a nurse in the operating room. I was in he theatre where the neurosurgeon was working. We had a chat. Her face said it all. "Dont leave that Maggie" she said and she arranged for me to see an opthamolist the next day. Still nothing was seen but the opthalmologist booked an MRI for the next day. By this time I was not worried as there was no evidence that anything was wrong and nobody else seemed worried and the majority of brain tumours you have idea of before the MRI and we had nothing to suggest any problems.
During the MRI I new something was wrong. Lots of people kept coming and going and we were in their for nearly one and a half hours. Georgia did so well to stay in the scanner for that length of time. When we came out of the MRI machine,  the radiologist said you need to go straight back to the opthlamologist I have seen something. I did not ask I just picked up the MRI scans and walked out. I never looked at the MRI I just left it in the packet. Georgia asked me what we were doing as she was keen to get back to school I just looked at her so innocent, no idea of the impending doom we had to face. I was numb and not sure if I could get to the opthamologist clinic. I felt ill and confused.  Deep down I new it was bad.
 Driving around for ages not knowing where or what I was doing. My husband and the Dr were getting very worried about Georgia and I.  We eventually made it to the Drs rooms, where he told us the news. We were devastated our daughter a brain tumour you must be wrong. Its something you read about in magazines that cant be right. "Where is it I asked," in the Pons was the reply from the Dr.  I new this would be a nightmare "what!"  I screamed "are you sure?  it cant be." " Its a bloody disaster in the Pons " I shouted. Its in the worst area you can get one. I immediatley began to feel sick,  cry,  and make lots of quiet screaming noises as our daughter was playing with toys in the waiting room outside the door.   I didnt want her to hear me. We were in total shock. My husband was pale and numb and said nothing, just in total shock.  It took our family many weeks to get to grips with this diagnosis.  The more we searched for medical miracles the more we realized we need that miracle.  DIPG is the worst tumour you can ever imagine. Sitting there happily in the brain stem vertually untouchable. At the moment we are symtom free as Georgia ended her treatment 4th Sept. She endured 6 wks of radiation treatment with a sensitising agent to make the radiaition more effective.   We read many of the other DIPG stories on the caringbridge website and we are aware of what can happen to our daughter and our family.
 Georgia has a 10yr old brother called Aaron who is a quiet boy but Aaron and Georgia play with each other constantley.  He has an idea things are going to be hard.  The other day he said "Georiga is a good sister, she is going to be okay mum isnt she?" " Georgia isnt going to die is she?"  I stood their in disbeleif and said  " We dont know whats going to happen  darling but we are all going to do our best for Georgia. "

Thats our story. Please leave messages if you need to.

Maggie&Richard

 

 

Latest Journal Update

georgia's birthday

Georgia's 13th birthday this saturday. Time just passing by and we still seem to be treading water. Aaron managed to fracture two bones in his spine in May so he is still recovering. He did it playing basketball.  He had a scan yesterday with an appointment with the spinal specialist next week. We are hoping for the all clear in that he is able to do some exercise.
Ive joined into a 12week challenge at the gym as I have put lots kilos back on. I have stagnated a little and this is just the push I need to get moving. I still go to the gym and do my stuff but I need something different.
Richard plodds on with injury after injury is it a sign we are getting old!!!!
Cant believe Georgia would have been 13. We are going to celebrate our love for her. We still miss her more than ever. I know many of you do too as I get my messages from you guys and I know for many not a day goes by you dont think of her.
One mistake I made was listen to someone who I now know was totally wrong. They said dont you think its time or a rest.. Look what happens you lose motivation' cant be bothered' put weight on have health issues. I have always been goal driven thats me. If it gets me through each day well thats good. I dont need the comments re exercise. I have gone to the gym since leaving school its who I am.  Everyone has different way managing their grief that is unique to them. Let people do it their way.
HAPPY BIRTHDAY GORGEOUS GIRL.  Never ever forget you.

Mum Dad Aaron and our little foster child Tahlayah.


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Comments

8 Comments

Teresa Drewett
By Teresa Drewett
Missing Georgia each day, missing how rough she would be with me after school when I would go to pick up Nicole; pulling me backwards by grabbing my backpack. she always had a cheeky smile and I couldn't help but laugh. Not a day goes by where our family isn't reminded of you xx
Derric williams
By Chalene Williams
Hey Maggie I know it's been a very long time since I've posted on caring bridge but I think of you all
All the time . . . Love your friend
CHALENE . . DERRIC MOM
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sarah walker
By Sarah walker
I can't believe someone could be so heartless how horrible, however we are so far away and always think of you all hope Saturday is a special day I'm sure she will be looking down to make sure!! Lots of love Sarah,lee,Ben n Hollie xxx
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Hooi  Loo
By hooi@nw.com.au
Happy birthday georgia. I will always remember it as a day after jia ding's birthday. Remembered the day when sister lee asked them for their birth date in ward 3b when georgia was 7 and jia ding was 5.
Michelle Burgess
By Michelle Burgess
Maggie,

I have been thinking about you and Georgia so much lately knowing her birthday was coming up right behind Ethan's. I hope your challenge goes well and Aaron's spine is in on the mend.

Lots of love to you,
Michelle - Angel Ethan's Mom
Kim Vaughn
By Kim Vaughn
Love and prayers for you and your family....sending sweet birthday wishes to Georgia! ♥ She is always remembered, always loved!
marina richardson
By
Thinking about you all. You grieve how you want to Maggie and don't let anybody tell you otherwise. Hugs and kisses to you all. Love Marina xxxx
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Ruby McGill
By Ruby McGill
Thinking of you, and Georgia on the 16th. Praying for happy memories of your beautiful girl.