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Georgia’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

My name is Georgia, I am 7yrs of age. I was diagnosed with a Diffuse Intrinsic Pontine Glioma on the 15th June 2008.

Just beore leaving for school Georgia shouted "mum I can see two of everything out of my eye"  Georgia could see two of everything out of her left eye. She was not dizzy, or ill. 

"We will call into the optometrist and get them to have a quick look at your eye beore you go to school."

Georgia loves playing Australian Football and plays with a mixed team for the Sharks. She played on the Sunday then complained of double vision out her left eye the next day. I thought she must have had a knock to the head as it can be a full on game even at this age. Off we went to see the optometrist. Not a thing was seen so we booked an appointment with our G.P. We could not get into the GP until the end of the week,  I was uneasy with that. 
 Fortunatley that evening I went to work, I am a nurse in the operating room. I was in he theatre where the neurosurgeon was working. We had a chat. Her face said it all. "Dont leave that Maggie" she said and she arranged for me to see an opthamolist the next day. Still nothing was seen but the opthalmologist booked an MRI for the next day. By this time I was not worried as there was no evidence that anything was wrong and nobody else seemed worried and the majority of brain tumours you have idea of before the MRI and we had nothing to suggest any problems.
During the MRI I new something was wrong. Lots of people kept coming and going and we were in their for nearly one and a half hours. Georgia did so well to stay in the scanner for that length of time. When we came out of the MRI machine,  the radiologist said you need to go straight back to the opthlamologist I have seen something. I did not ask I just picked up the MRI scans and walked out. I never looked at the MRI I just left it in the packet. Georgia asked me what we were doing as she was keen to get back to school I just looked at her so innocent, no idea of the impending doom we had to face. I was numb and not sure if I could get to the opthamologist clinic. I felt ill and confused.  Deep down I new it was bad.
 Driving around for ages not knowing where or what I was doing. My husband and the Dr were getting very worried about Georgia and I.  We eventually made it to the Drs rooms, where he told us the news. We were devastated our daughter a brain tumour you must be wrong. Its something you read about in magazines that cant be right. "Where is it I asked," in the Pons was the reply from the Dr.  I new this would be a nightmare "what!"  I screamed "are you sure?  it cant be." " Its a bloody disaster in the Pons " I shouted. Its in the worst area you can get one. I immediatley began to feel sick,  cry,  and make lots of quiet screaming noises as our daughter was playing with toys in the waiting room outside the door.   I didnt want her to hear me. We were in total shock. My husband was pale and numb and said nothing, just in total shock.  It took our family many weeks to get to grips with this diagnosis.  The more we searched for medical miracles the more we realized we need that miracle.  DIPG is the worst tumour you can ever imagine. Sitting there happily in the brain stem vertually untouchable. At the moment we are symtom free as Georgia ended her treatment 4th Sept. She endured 6 wks of radiation treatment with a sensitising agent to make the radiaition more effective.   We read many of the other DIPG stories on the caringbridge website and we are aware of what can happen to our daughter and our family.
 Georgia has a 10yr old brother called Aaron who is a quiet boy but Aaron and Georgia play with each other constantley.  He has an idea things are going to be hard.  The other day he said "Georiga is a good sister, she is going to be okay mum isnt she?" " Georgia isnt going to die is she?"  I stood their in disbeleif and said  " We dont know whats going to happen  darling but we are all going to do our best for Georgia. "

Thats our story. Please leave messages if you need to.

Maggie&Richard

 

 

Latest Journal Update

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Have not written for a while guess that's how things go . Ive noticed many don't keep their sites going after their child passes over. Interestingly Andrew Smiths site came up on mine tonight. Sandy don't know what your up to these days but your boy is so gorgeous and it was wonderful to see his beautiful photo again tonight.

We are all still plodding on. Aaron passed his driving test few weeks back. Scary thought but they have their life to live and who are we to stop that even though we are so scared of something happening. Ive been having nightmares about Aaron drowning of all things, He is brilliant swimmer but gets caught up in a tsunami.He still swims for a swimming squad and just won champion boy for swimming.

It never ends though I never expected it would. I see Georgias friends and wonder what she would be like, What would she be doing its endless and always will be. Im lucky to have some amazing friends who keep me motivated. I am doing HBF run for reason in Georgias colours. There are quite few people running too which will be good again.

Everyone remains well and hope you guys are.  Love to you all. Stay in touch.


Maggie



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Comments

6 Comments

Ruth Warner
By Ruth Warner
I enjoy any update regarding how families are doing after losing their child. I connect with families in the midst of crisis and the caring continues thereafter.

Aaron is certainly growing up. Although, in some ways, I would keep my children and grandchildren at a certain age, I realize that is not realistic -- as you well know. GO!! Aaron.
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Joan Gillespie
By Joan Gillespie
Hi Maggie, Always good to hear from the DIPG family. My account did not show a note from Andrew Smith although I followed him during
his journey also. Perhaps I can just get on his CB. Yes, the siblings of our kids continue to grow and do new and interesting things, always makes us wonder what our Angels would have been up to. Always good to read a note from you. Wishing you Happy Easter.
Kim Vaughn
By Kim Vaughn
Wow...Aaron is in the drivers seat?! Congratulations to him!! :) (And praying for his safety, in all he does.) I do appreciate the updates to know how you're doing...I find myself attached to so many of the families that I've kept up with on Caring Bridge, and I care about you guys! Remembering Georgia, with love. ♥
Kathleen Wilson
By Kathleen Wilson
Georgia is always with you watchig over you from the heavens above.
Sheila Jones
By Sheila Jones "Always Sammy's Grammie"
Maggie, I'll always remember your precious girl. We have to see the beauty in life to continue on however hard it is. 💗 to all your family
Michelle Burgess
By Michelle Burgess
Maggie- I think about you so often and wish you were on Facebook so we could keep in touch more. I don't update Ethan's site nearly enough. I always tell myself I'll do it more than I don't :( It was so nice to see an update from you and your beautiful Georgia. Sending love and hugs.

Michelle - Angel Ethan's Mom
http://www.caringbridge.org/visit/ethanmaxwilliams