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Georgia’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

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My name is Georgia, I am 7yrs of age. I was diagnosed with a Diffuse Intrinsic Pontine Glioma on the 15th June 2008.

Just beore leaving for school Georgia shouted "mum I can see two of everything out of my eye"  Georgia could see two of everything out of her left eye. She was not dizzy, or ill. 

"We will call into the optometrist and get them to have a quick look at your eye beore you go to school."

Georgia loves playing Australian Football and plays with a mixed team for the Sharks. She played on the Sunday then complained of double vision out her left eye the next day. I thought she must have had a knock to the head as it can be a full on game even at this age. Off we went to see the optometrist. Not a thing was seen so we booked an appointment with our G.P. We could not get into the GP until the end of the week,  I was uneasy with that. 
 Fortunatley that evening I went to work, I am a nurse in the operating room. I was in he theatre where the neurosurgeon was working. We had a chat. Her face said it all. "Dont leave that Maggie" she said and she arranged for me to see an opthamolist the next day. Still nothing was seen but the opthalmologist booked an MRI for the next day. By this time I was not worried as there was no evidence that anything was wrong and nobody else seemed worried and the majority of brain tumours you have idea of before the MRI and we had nothing to suggest any problems.
During the MRI I new something was wrong. Lots of people kept coming and going and we were in their for nearly one and a half hours. Georgia did so well to stay in the scanner for that length of time. When we came out of the MRI machine,  the radiologist said you need to go straight back to the opthlamologist I have seen something. I did not ask I just picked up the MRI scans and walked out. I never looked at the MRI I just left it in the packet. Georgia asked me what we were doing as she was keen to get back to school I just looked at her so innocent, no idea of the impending doom we had to face. I was numb and not sure if I could get to the opthamologist clinic. I felt ill and confused.  Deep down I new it was bad.
 Driving around for ages not knowing where or what I was doing. My husband and the Dr were getting very worried about Georgia and I.  We eventually made it to the Drs rooms, where he told us the news. We were devastated our daughter a brain tumour you must be wrong. Its something you read about in magazines that cant be right. "Where is it I asked," in the Pons was the reply from the Dr.  I new this would be a nightmare "what!"  I screamed "are you sure?  it cant be." " Its a bloody disaster in the Pons " I shouted. Its in the worst area you can get one. I immediatley began to feel sick,  cry,  and make lots of quiet screaming noises as our daughter was playing with toys in the waiting room outside the door.   I didnt want her to hear me. We were in total shock. My husband was pale and numb and said nothing, just in total shock.  It took our family many weeks to get to grips with this diagnosis.  The more we searched for medical miracles the more we realized we need that miracle.  DIPG is the worst tumour you can ever imagine. Sitting there happily in the brain stem vertually untouchable. At the moment we are symtom free as Georgia ended her treatment 4th Sept. She endured 6 wks of radiation treatment with a sensitising agent to make the radiaition more effective.   We read many of the other DIPG stories on the caringbridge website and we are aware of what can happen to our daughter and our family.
 Georgia has a 10yr old brother called Aaron who is a quiet boy but Aaron and Georgia play with each other constantley.  He has an idea things are going to be hard.  The other day he said "Georiga is a good sister, she is going to be okay mum isnt she?" " Georgia isnt going to die is she?"  I stood their in disbeleif and said  " We dont know whats going to happen  darling but we are all going to do our best for Georgia. "

Thats our story. Please leave messages if you need to.




Latest Journal Update


It was Georgias 14th birthday on the 16th August. Time just goes no where. We celebrated a bit let some balloons go had a birthday cake and few other things. Managing okay here but its still up and down for me anyway and I don't think that will ever change..Always think how different our lives would have been if Georgia was still here. But the other side of the coin is I would not know what I know now. Different treatments heaps specialists all with different ideas. I would never have met many of you guys.Would never had made many new friends around the globe and would never have had my eyes opened to life...What it means and to be never afraid of death. The complaining that goes on over the craziest things its not worth it let it go and get on enjoy your life you never know what the next corner brings.

Love to you all.


6 people hearted this



Janice Mulry
Thinking of you and your family often Maggie. I will never forget being involved with you all and your beautiful Georgia - I learnt so much, just by being around at that time. Hoping you are having more good days than bad. xxx
Kathy Jo Stuva
By Kathy Jo Stuva. Springfield, Illinois
Praying for you tonight.
Hooi  Loo
It has been many years. Jia ding turned 12 on the 15th. Always remembered Georgia's birthday because when sister Lee at PMH asked for both Georgia's and jia dings birth dates before giving the transfusions, we've all made a comment on how close the dates were. Happy belated birthday to Georgia. Hope to catch you more at the shop, Maggie.
Hooi  Loo
It has been many years. Jia ding turned 12 on the 15th. Always remembered Georgia's birthday because when sister Lee at PMH asked for both Georgia's and jia dings birth dates before giving the transfusions, we've all made a comment on how close the dates were. Happy belated birthday to Georgia. Hope to catch you more at the shop, Maggie.
Kim Vaughn
By Kim Vaughn
Where does the time go? I hope you guys were surrounded by lots of love on Georgia's birthday. It sounds like you guys found a good way to honor Georgia on her special day. I know this experience has given you a better perspective than many have about what truly matters in life. You guys have come a long way through this journey - a journey I wish you never had to take. I'm glad you guys are doing okay and making your way through...I know you carry Georgia with you, always. She is loved and remembered. Sending hugs from Michigan!
Michelle Burgess
By Michelle Burgess
Maggie - Where has the time gone?? We just moved into a new home on July 31st. Only a week before Ethan's birthday. It was probably a good distraction from the usual countdown to the birthday but just like you said all I could think about was how much better it would have been if Ethan would have been here to enjoy the new house. It is a beautiful home on 14 acres of land, 12 acres of woods and 2 acres cleared. He would have had so much fun exploring. Hard to believe our babies would be 14 now. Love and hugs to you.
1 person hearted this
Ruby McGill
By Ruby McGill
It is hard to believe the time that has passed. I know the loss and missing her will never leave you. I pray for peace and serenity each day for you all.