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Georgia’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

My name is Georgia, I am 7yrs of age. I was diagnosed with a Diffuse Intrinsic Pontine Glioma on the 15th June 2008.

Just beore leaving for school Georgia shouted "mum I can see two of everything out of my eye"  Georgia could see two of everything out of her left eye. She was not dizzy, or ill. 

"We will call into the optometrist and get them to have a quick look at your eye beore you go to school."

Georgia loves playing Australian Football and plays with a mixed team for the Sharks. She played on the Sunday then complained of double vision out her left eye the next day. I thought she must have had a knock to the head as it can be a full on game even at this age. Off we went to see the optometrist. Not a thing was seen so we booked an appointment with our G.P. We could not get into the GP until the end of the week,  I was uneasy with that. 
 Fortunatley that evening I went to work, I am a nurse in the operating room. I was in he theatre where the neurosurgeon was working. We had a chat. Her face said it all. "Dont leave that Maggie" she said and she arranged for me to see an opthamolist the next day. Still nothing was seen but the opthalmologist booked an MRI for the next day. By this time I was not worried as there was no evidence that anything was wrong and nobody else seemed worried and the majority of brain tumours you have idea of before the MRI and we had nothing to suggest any problems.
During the MRI I new something was wrong. Lots of people kept coming and going and we were in their for nearly one and a half hours. Georgia did so well to stay in the scanner for that length of time. When we came out of the MRI machine,  the radiologist said you need to go straight back to the opthlamologist I have seen something. I did not ask I just picked up the MRI scans and walked out. I never looked at the MRI I just left it in the packet. Georgia asked me what we were doing as she was keen to get back to school I just looked at her so innocent, no idea of the impending doom we had to face. I was numb and not sure if I could get to the opthamologist clinic. I felt ill and confused.  Deep down I new it was bad.
 Driving around for ages not knowing where or what I was doing. My husband and the Dr were getting very worried about Georgia and I.  We eventually made it to the Drs rooms, where he told us the news. We were devastated our daughter a brain tumour you must be wrong. Its something you read about in magazines that cant be right. "Where is it I asked," in the Pons was the reply from the Dr.  I new this would be a nightmare "what!"  I screamed "are you sure?  it cant be." " Its a bloody disaster in the Pons " I shouted. Its in the worst area you can get one. I immediatley began to feel sick,  cry,  and make lots of quiet screaming noises as our daughter was playing with toys in the waiting room outside the door.   I didnt want her to hear me. We were in total shock. My husband was pale and numb and said nothing, just in total shock.  It took our family many weeks to get to grips with this diagnosis.  The more we searched for medical miracles the more we realized we need that miracle.  DIPG is the worst tumour you can ever imagine. Sitting there happily in the brain stem vertually untouchable. At the moment we are symtom free as Georgia ended her treatment 4th Sept. She endured 6 wks of radiation treatment with a sensitising agent to make the radiaition more effective.   We read many of the other DIPG stories on the caringbridge website and we are aware of what can happen to our daughter and our family.
 Georgia has a 10yr old brother called Aaron who is a quiet boy but Aaron and Georgia play with each other constantley.  He has an idea things are going to be hard.  The other day he said "Georiga is a good sister, she is going to be okay mum isnt she?" " Georgia isnt going to die is she?"  I stood their in disbeleif and said  " We dont know whats going to happen  darling but we are all going to do our best for Georgia. "

Thats our story. Please leave messages if you need to.

Maggie&Richard

 

 

Latest Journal Update

Georgias angel day

Just wanted to drop into the site today. Who can believe its 6years this Thursday that Georgia went to heaven.  I really find it hard to comprehend. I still feel I'm stuck in some kind time wharp...Still wish it was me instead. It wasn't and somehow you have to find a way of going forward.   We are doing balloons early we normally do them later. But the boys are working so we will be releasing them around 7am so look to the skies.  Thinking of the Wilson family too at this time. Our love goes out to you and your family. We should unite together Amanda and do a big event in memory of Tom and Georgia forever young.    Love to you all . Thank you everyone for your ongoing support in our times of need. We will never forget you Georgia you are always in our hearts.   Love you forever.

Maggie 
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Comments

6 Comments

Michelle Burgess
By Michelle Burgess
Maggie,

Have been thinking about you and sweet Georgia. Can't believe it has been 6 years. Hugs to you guys. Sending lots of love.

Michelle - Ethan's Mommy
Kim Vaughn
By Kim Vaughn
I love you guys...and continue to remember Georgia and hold your family in my prayers. It's so hard to believe 6 years have passed. I know we all wanted the outcome to be so different. I don't understand why thing happen the way they do. I'm sure she would be so proud of you guys in finding the way to get through life's most difficult times. Georgia is loved and remembered. Always. ♥
marina richardson
By marina richardson
Thinking about you all xxxxxx xx
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John Slater
By John Slater
Keeping you in our thoughts especially on days that are harder than most. This Thursday will be one of those days for all the family.
Take Care xxx
John & Caron Slater ( ^^Joe;s ^^ ) Grandad & Grandma
England
Libby  Lee
By Libby Lee-Hammond
Sending you all much love on this anniversary for Georgia, I too can't believe it's six years. I will never forget those days following when she let us know her spirit was still around - it was uncanny to say the least. Those orange and purple chocolates showing up at the door and a whole batch of balloons taking to the sky all by themselves. Thank you for sharing your journey so openly with us and inviting us to share your memories and your grief. I will never visit Beasley Oval without seeing Georgia in my mind running around with a football and full of confidence. She will always be a very special soul. Much love to you from all of us. Libby Steve, Caleb Finn and Jesse xxx
kacey grieves
By kacey grieves
Often think of you Maggie. Sending a big hug. x