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My Story is the introduction to our CaringBridge site.
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My name is Georgia, I am 7yrs of age. I was diagnosed with a Diffuse Intrinsic Pontine Glioma on the 15th June 2008.
Just beore leaving for school Georgia shouted "mum I can see two of everything out of my eye" Georgia could see two of everything out of her left eye. She was not dizzy, or ill.
"We will call into the optometrist and get them to have a quick look at your eye beore you go to school."
Georgia loves playing Australian Football and plays with a mixed team for the Sharks. She played on the Sunday then complained of double vision out her left eye the next day. I thought she must have had a knock to the head as it can be a full on game even at this age. Off we went to see the optometrist. Not a thing was seen so we booked an appointment with our G.P. We could not get into the GP until the end of the week, I was uneasy with that. Fortunatley that evening I went to work, I am a nurse in the operating room. I was in he theatre where the neurosurgeon was working. We had a chat. Her face said it all. "Dont leave that Maggie" she said and she arranged for me to see an opthamolist the next day. Still nothing was seen but the opthalmologist booked an MRI for the next day. By this time I was not worried as there was no evidence that anything was wrong and nobody else seemed worried and the majority of brain tumours you have idea of before the MRI and we had nothing to suggest any problems. During the MRI I new something was wrong. Lots of people kept coming and going and we were in their for nearly one and a half hours. Georgia did so well to stay in the scanner for that length of time. When we came out of the MRI machine, the radiologist said you need to go straight back to the opthlamologist I have seen something. I did not ask I just picked up the MRI scans and walked out. I never looked at the MRI I just left it in the packet. Georgia asked me what we were doing as she was keen to get back to school I just looked at her so innocent, no idea of the impending doom we had to face. I was numb and not sure if I could get to the opthamologist clinic. I felt ill and confused. Deep down I new it was bad. Driving around for ages not knowing where or what I was doing. My husband and the Dr were getting very worried about Georgia and I. We eventually made it to the Drs rooms, where he told us the news. We were devastated our daughter a brain tumour you must be wrong. Its something you read about in magazines that cant be right. "Where is it I asked," in the Pons was the reply from the Dr. I new this would be a nightmare "what!" I screamed "are you sure? it cant be." " Its a bloody disaster in the Pons " I shouted. Its in the worst area you can get one. I immediatley began to feel sick, cry, and make lots of quiet screaming noises as our daughter was playing with toys in the waiting room outside the door. I didnt want her to hear me. We were in total shock. My husband was pale and numb and said nothing, just in total shock. It took our family many weeks to get to grips with this diagnosis. The more we searched for medical miracles the more we realized we need that miracle. DIPG is the worst tumour you can ever imagine. Sitting there happily in the brain stem vertually untouchable. At the moment we are symtom free as Georgia ended her treatment 4th Sept. She endured 6 wks of radiation treatment with a sensitising agent to make the radiaition more effective. We read many of the other DIPG stories on the caringbridge website and we are aware of what can happen to our daughter and our family. Georgia has a 10yr old brother called Aaron who is a quiet boy but Aaron and Georgia play with each other constantley. He has an idea things are going to be hard. The other day he said "Georiga is a good sister, she is going to be okay mum isnt she?" " Georgia isnt going to die is she?" I stood their in disbeleif and said " We dont know whats going to happen darling but we are all going to do our best for Georgia. "
Thats our story. Please leave messages if you need to.
We always live an interesting life. Up and down like yo yo's. We are all into exercise and us oldies are slowly wearing our joints out!!!! Catch 22 keep on going and wear out or sit an fester and become depressed. Too much spare time is a menance to the grieving person.
Aaron continues on his swiing. Getting very fit now and hoping to do well at the up coming championships. He rides everywhere, goes to the gym dont worry I give him a good workout!! He swims lots and plays basketball. Will let you know how he goes with swimming. He is active with canteen the great organisation for cancer children and sibblings as well as children who have lost parents to cancer. I am organising big fundraiser on May 3rd. Will fill you in on details after I finalise it all on Sunday.
Tahlayah our small foster child keeps us busy too. Another athlete in the making, she can run fast and she too is a great swimmer. At just 6 managed to swim 25metres. She stared swimming in September.I think Aaron is her motivation.
Rich and myself just plodd on. We get new issues happening and old ones becoming less and less. Obviuosly the new ones are what would Georgia be like now. See her friends often they are growing up. Georgia would have been 13yrs old this year. I have started to fix onto what an I going to do when Georgia has been living in heaven longer than here with her family. Ive no idea why im doing this. You talk to the professionals and i am sorry to say most have no idea what they are talking about. Ive got one gorgeous person i talk with.Reliable with information and is good listener. I know some of you will know what I am talking about. Anyway wont dwell. Just keep your positive heads on forget the negative it will drive you insane.