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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.

My name is Georgia, I am 7yrs of age. I was diagnosed with a Diffuse Intrinsic Pontine Glioma on the 15th June 2008.

Just beore leaving for school Georgia shouted "mum I can see two of everything out of my eye"  Georgia could see two of everything out of her left eye. She was not dizzy, or ill. 

"We will call into the optometrist and get them to have a quick look at your eye beore you go to school."

Georgia loves playing Australian Football and plays with a mixed team for the Sharks. She played on the Sunday then complained of double vision out her left eye the next day. I thought she must have had a knock to the head as it can be a full on game even at this age. Off we went to see the optometrist. Not a thing was seen so we booked an appointment with our G.P. We could not get into the GP until the end of the week,  I was uneasy with that. 
 Fortunatley that evening I went to work, I am a nurse in the operating room. I was in he theatre where the neurosurgeon was working. We had a chat. Her face said it all. "Dont leave that Maggie" she said and she arranged for me to see an opthamolist the next day. Still nothing was seen but the opthalmologist booked an MRI for the next day. By this time I was not worried as there was no evidence that anything was wrong and nobody else seemed worried and the majority of brain tumours you have idea of before the MRI and we had nothing to suggest any problems.
During the MRI I new something was wrong. Lots of people kept coming and going and we were in their for nearly one and a half hours. Georgia did so well to stay in the scanner for that length of time. When we came out of the MRI machine,  the radiologist said you need to go straight back to the opthlamologist I have seen something. I did not ask I just picked up the MRI scans and walked out. I never looked at the MRI I just left it in the packet. Georgia asked me what we were doing as she was keen to get back to school I just looked at her so innocent, no idea of the impending doom we had to face. I was numb and not sure if I could get to the opthamologist clinic. I felt ill and confused.  Deep down I new it was bad.
 Driving around for ages not knowing where or what I was doing. My husband and the Dr were getting very worried about Georgia and I.  We eventually made it to the Drs rooms, where he told us the news. We were devastated our daughter a brain tumour you must be wrong. Its something you read about in magazines that cant be right. "Where is it I asked," in the Pons was the reply from the Dr.  I new this would be a nightmare "what!"  I screamed "are you sure?  it cant be." " Its a bloody disaster in the Pons " I shouted. Its in the worst area you can get one. I immediatley began to feel sick,  cry,  and make lots of quiet screaming noises as our daughter was playing with toys in the waiting room outside the door.   I didnt want her to hear me. We were in total shock. My husband was pale and numb and said nothing, just in total shock.  It took our family many weeks to get to grips with this diagnosis.  The more we searched for medical miracles the more we realized we need that miracle.  DIPG is the worst tumour you can ever imagine. Sitting there happily in the brain stem vertually untouchable. At the moment we are symtom free as Georgia ended her treatment 4th Sept. She endured 6 wks of radiation treatment with a sensitising agent to make the radiaition more effective.   We read many of the other DIPG stories on the caringbridge website and we are aware of what can happen to our daughter and our family.
 Georgia has a 10yr old brother called Aaron who is a quiet boy but Aaron and Georgia play with each other constantley.  He has an idea things are going to be hard.  The other day he said "Georiga is a good sister, she is going to be okay mum isnt she?" " Georgia isnt going to die is she?"  I stood their in disbeleif and said  " We dont know whats going to happen  darling but we are all going to do our best for Georgia. "

Thats our story. Please leave messages if you need to.

Maggie&Richard

 

 

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Maggie Marshall posted a new journal entry, "WHEN DO THINGS GET BETTER".

We always live an interesting life. Up and down like yo yo's. We are all into exercise and us oldies are slowly wearing our joints out!!!!  Catch 22 keep on going and ... Read more

Joeley Howard signed Georgia's Guestbook.

Hi Maggie I will send you a txt tomorrow. I have just read past messages and unsure if it was me you were trying to contact in November last year. I hope that all is well. ... Read more

Joan Gillespie signed Georgia's Guestbook.

Maggie.....Love the picture............precious memories.....you are so right...............we just keep on keeping on!!! and time goes by.Understanding with love, walking ... Read more

Kim Vaughn signed Georgia's Guestbook.

It sounds like you guys are staying busy with everything, and so wonderful to hear how Aaron is growing.  It also has to be such a blessing to have a foster child in your ... Read more

Ruth Warner signed Georgia's Guestbook.

I think of you and your family often.  Exercise seems to be helpful for those who are grieving.  Good for Aaron swimming, biking and training for basketball.  Those ... Read more

Ruth Warner signed Georgia's Guestbook.

Thoughts of you and your family will continue. While you left home for a break from heartache and sadness, Georgia was with you.  She is forever embedded in your heart ... Read more

Michelle Burgess signed Georgia's Guestbook.

Thinking of you guys and your beautiful sweet Georgia.  I can hardly believe it has been 4 years since our babies got their wings.  In a way it feels like yesterday but ... Read more

Jonathan Agin signed Georgia's Guestbook.

Our thoughts are with you guys this time of year.  Never easy, thanks for the kind note.  Hope you guys are hanging in there as best as you can. Read more

Sandy Smith signed Georgia's Guestbook.

Four years! Hard to believe, isn't it? There is no reason for guilt, Maggie. You tried everything you could do. Don't carry guilt along with the grief. Missing them is ... Read more

Kim Vaughn signed Georgia's Guestbook.

Sending you hugs, and remembering Georgia.  You all gave her so much love and support, and always made the best decisions for her, based on all the information you had.  ... Read more

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