Welcome to Gavin's caringbridge site! Gavin was diagnosed with a rare brain tumor in April 2012 when he was 5 years old. His treatment plan has been changed multiple times and has been on a clinical trial drug for over a year called Palbociclib. He is the only child in the country on it and it has shown to stop the growth of his tumor. Gavin nicknamed his tumor Joe Bully. Gavin's tumor was large and after 5 craniotomies, chemo, steroids and no real treatment - he was given a grim prognosis in January 2013. We refused to believe he had gone through so much to just give up and fought hard to get the clinical trial drug from Pfizer. His tumor is finally under control with the new drug, and he has minor side effects thus far.
On October 29, Gavin was the first person in the upper midwest to have a brain tumor laser procedure to ablate his tumor. The surgery used heat to kill about half of the tumor. Gavin will have another laser procedure (Visualase) in February. His clinical course is unique in many ways, and has been unpredictable. He is full of life and humor and loves making others smile. This journey has been long but we have hope for some day without Joe Bully!
If you would like to donate in support of Gavin you can do so at Wells Fargo under the account "Gavin Pierson Donation Account". Thank you for following Gav's journey.