Gavin Pierson's Journal
Written Feb 14, 2014 6:54pmI digress from my worrying last night. I think that I just need to take a deep breath and know that everyone wants Gavin to be cured, in the safest way possible and we just do not know, which is hard. This week has been rough. Stress clouds thinking and also allows negativity and anger to come out. I am under a lot right now. I am only human and I need to understand that. I give my worries to God, he is the one who can handle them all, I cannot.
We are moving ahead to think positive and love each other right now. I can not control. I can not change what has already happened. I would like to, but I can't. I also cannot predict the future - and I need to understand that nobody can. Life is so hard sometimes. Some days feel as if everything is impossible - and others like everything IS possible. Everyone feels this in life. I am getting to a point in all of this - where the anger is taking over. It is making me forget how amazing Gavin is and how many miracles he has been given.
After school today Gavin came home and told me all about his Valentines day in school - his favorite part was making the cookies :) I told him that Joe Bully surgery is 6 days away and he did a happy dance. I don't know any kids that are excited for surgery - it shows his courage and how he is where he is today. I am so thankful for him and for my life and the blessings in it. Looking forward to a 3 day weekend with the family <3
On the mend
Written Feb 10, 2014 1:06pmGavin did better yesterday, he ate a little bit and took like 4 little cat naps. He slept all night with no sickness. This morning, he felt ishy still so we kept him home from school. Hoping he returns to school tomorrow feeling better.
He has been teaching me new vocabulary words, like chasm. He informed me that it is a large crevice in the earth. I guess once he told me what it was I recalled it but I am amazed at his vocabulary. It is one of his strengths. When a cheetah was on his show, he informed me that the cheetah is the fastest land animal, and can go 70 mph. Finally - the fastest bird is the Peregrine Falcon - topping out at 200 mph.
I am home today and we are on the couches just being lazy and trying to feel better. He is keeping my mind off things with all of his facts :)
Gavin and the flu :(
Written Feb 8, 2014 8:57pmAs I said in my last post, Gavin had so far dodged the flu. Well it started at 1:30 am this morning. Poor kid has had both diarrhea and puking all through the night and all day. Sometimes he was on the toilet while puking in a bucket. Sorry for the TMI... He has it way worse than the other two, who had it for a shorter time period and not both for so many hours.
I will say, when he is not getting sick, he is such a trooper and is positive. When Grace and Gage had it, they acted like they were just so down and out the entire time - I think Gavin is a pro at just pushing through it. Makes me sad to see how strong he was dealing with this because of the things I know that have built up his tolerance :(. At one point after trip 30 or so, totally NOT an exaggeration, he said, "Mom you promise this will be gone soon, like in a couple of days?" Oh my most kids would have been crying all day, he just does what he has to and moves on. He did not sleep much at all through the night but has had a few short naps today and was out for the night at 7:30. I am praying and hoping that he gets good rest and that tomorrow he feels a tiny bit better. He has been drinking water, gatorade and apple juice to stay hydrated but has not eaten one piece of food today. He couldn't even keep some of the liquids down so we did not even attempt it. Hopefully we can introduce food tomorrow. Poor kiddo!
He was supposed to take his last Joe Bully pills tonight for this cycle but could not swallow the first and almost threw up in the process. Luckily I think most of his other meds were in his blood before throwing up. We will just stop Joe Bully a day earlier. 12 days - TWELVE!! I have such mixed emotions about this day. This could really be it - the end of this monster!! But nobody can promise us anything being he is making his own treatment course. I am very hopeful though. Even if there is a tiny little mini bully left - that would be so amazing!! I am hoping that in the next 12 days Gavin gets rid of all the crud going on in his body and also that he gains energy and his counts rise now that he is off the cycle of Palbo.
That's all for now - I am also not feeling well and have this super weird lymph node swollen that is on my cheek by my ear. I looked it up and it is the parotoid gland. It is super painful, swollen and I am very tired. I have been getting chills and have a low grade fever so off to urgent care in the a.m for me :) Super fun times in our house! Lol. Have a great Sunday everyone. Praise God for all that you have and love one another!