I have cut down to once a week journal updates because things remain the same for now. Gavin is in a really good place. I honestly feel like we could just be done right now
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Back to school tomorrow! I think the kiddos are going to be so tired after a full day of school, gymnastics, and karate! We had a great weekend before the big return. Gavin
Gavin had a wonderful Christmas! The best in 3 years by far. Full of energy and excitement- played with family and gifts. It couldn't have been a better Christmas and I do
Gavin has officially made it to school, without being sick or anxious for two whole weeks. He has been feeling really good - especially since he just ended Palbo this week.
Gavin has been having a much better week! He's been taking probiotics for his tummy and he hasn't been complaining about his throat as much. I'm hoping the ENT is right in t
Gavin had quite the week last week. He has been complaining about his throat feeling weird and like he can't breathe as easily. This has been causing him to get very anxious
Gavin went to school Monday and Tuesday and has been feeling well. We have been keeping him very hydrated and asking him how he's feeling often. This morning he woke up and
We are still in PICU because there are no rooms to be moved to. It looks like we will stay the night but Gav is now being followed by the hospital team. Dr. Frost, the neuro
Update - it's been a long day. Gavin couldn't eat today due to sedated MRI which happened around 4. The preliminary results show that the clot isn't worse compared to previous