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We are still in PICU because there are no rooms to be moved to. It looks like we will stay the night but Gav is now being followed by the hospital team. Dr. Frost, the neuro
Update - it's been a long day. Gavin couldn't eat today due to sedated MRI which happened around 4. The preliminary results show that the clot isn't worse compared to previous
Gavin is being transferred to St. Paul by ambulance at 11. He will have an MRI over there and we will be able to see Dr. Petronio. He had a good night with no more episodes an
Gavin went to school this morning but only lasted an hour. He was having trouble breathing and told the nurse the back of his head was tingly. A red flag went up as she told
Gavin had been feeling great until he got sick late last night with the stomach flu. He has been able to keep fluids down this morning and is taking a long nap to make up for
Okay, I am going to do my best at updating but there is so much I am sure I will forget something! We have been very busy with appointments, fun stuff and just life stuff.
Gavin started a new cycle of Palbo Thursday- which is like oral chemo. It's more of a targeted agent whereas chemo is systemic. I assume most people know that but if you are
This is featured on the Childrens Hospitals & Clinics of MN website. I wrote an update of Gavin's summer and recent success with the laser :)
Gavin made it all day today :) He said it went well but had a little tummy ache. I gave him zofran after school, which is helping. He is taking it easy with Gage - they are