Gavin Pierson's Journal
Written Feb 21, 2014 4:29pmWe are home!!!! How amazing is that?? On our way home we stopped at Taco Bell per Gavin's request. Mom got a new vehicle so we went inside to eat. He just sat there eating and talking like nothing happened. Unbelievable!
Hes going to rest up for the next couple of days and take it easy. Monday he has a post op MRI. He's on a short 5 days of steroids to help with inflammation. Next week he will start blood thinners again and Palbo.
It feels nice to be home and we are all excited to rest up. Gavin now has to rely on his body to finish what the laser started. The dead tissue will be absorbed and processed. He's already started to look flushed like last time but is in good spirits eating a candy bar :)
Written Feb 20, 2014 8:40pmLove Love Love how awesome Gavin is. He is talking, joking, eating, drinking, being sweet and SO smart! I mentioned how good his memory has been lately. This evening it continues, he is defining a blizzard (a heavy snowstorm with high winds), explaining all of the characteristics of a northern troodon, and telling his nurse how Dr. P is the boss of the all of the neurosurgeons. He seems to be pulling things out of his memory that he hasn't talked about in awhile, or that I have never heard him say before. Amazing.
The surgery today went very well. Gavin is staying tonight for sure and will have labs and an MRI tomorrow. If all looks good and he is doing fine he can go home tomorrow. Over the next few days he will experience some flu like symptoms while his body absorbs dead tissue. He is getting tired and is trying to get comfortable as I am typing. They tried to draw labs off his PICC line, and were not able to draw. They will try TPN, which can help when this problem arises. He has had his PICC line since November and we thought about getting it replaced but it has been working well...
I am exhausted. I think I slept about 4 hours last night. It has finally hit me. Today Childrens hospital followed Gav throughout his day and also interviewed us and Dr. Petronio. They will be putting a video together of his day. I will share once it is complete! I think it will be cool to see our day as an outsider looking in. They also took some pictures like the one I attached. I think Gavin fell asleep now :) I will update tomorrow, praying he continues doing so awesome. Thank you all for reading and posting today, it really helps us get through the day!
Written Feb 20, 2014 4:10pmWe haven't seen Gavin yet he is in recovery (PACU). The surgery went really well!! Dr. P said things went very smoothly. They ablated 5 times and the estimate of damage is a 2 cm hole through the width of the tumor! We were not given dimensions yet but it was about 2.5 by 3 by 3.1 cm. Take 2 cm off each of those numbers!! This is the smallest bully I've ever head of!
The laser will be used until this tumor is gone! Not today, but now that we have a second successful surgery I'm confident it will. What's left is oblong shaped and Dr. P is already planning his next attack. Dr. P also said that the blood clot is almost non existent. There is increased blood flow throughout the veins. This is a huge relief to us! Such good news :)
Cant wait to see my boy and love him up!!