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We got our first bottle of FDA approved Palbo today, the commercial name is Ibrance. The warnings on the info sheet scare me... the one that scares me the most is risk of Pul
Gavin will be having Visualase again in May. Ahhhh, we don't want to! Of course we want to burn up the bully... But Gavin doesn't want pokes, scans, surgery, hospital stay (
His next Visualase surgery will be in early May. The radiologist and Dr. P will be doing a MR perfusion scan to decide where viable tissue is, which they will then target duri
We were able to switch Gavins blood thinner- Lovenox, as well as the needles and catheters, back to Children's pharmacy. Now instead of nearly $500 a month it will be $50.
Great news- Medica approved coverage of Palbociclib!! I'm so relieved that this is not something more we need to fight for. I'm sure Dr. Schultz made a good case for it!
Gavin will see Dr. S and Dr. P at brain tumor clinic on April 1. At that appt we will discuss Visualase and when we feel he should have another procedure. This week we will
There is so much to tell - which is why it has taken a couple of days to finally get on CB and post :) To sum it up, our kids told us over and over again: BEST. VACATION. EVE
Gavin had his neuro oncology appt today. Dr. Schultz was amazed at how good he looked, his improved balance and that he no longer has right sided weakness. His eyes continue