Gavin had a CT this morning and sedated MRI, as well as labs for tomorrow. The IV went in perfectly with just one poke, and our plan was to leave it for surgery in the mornin
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We will be out the door by 7:15 a.m. tomorrow for pre-op scans and labs. We will be at Childrens from about 8 until 3-4ish. Gavin is getting an IV which I hope goes well - a
We are preparing for surgery. We received our "surgery booklet" in the mail. Gavin could author that book. The weird thing about getting ready for a 25th surgery (most bein
Gavin continues to do well. He has been tired the past few days however. His Vitamin D levels were low last time they were checked and he will be starting his 50,000 unit mo
Gavin started his first day of fourth grade today. It's so amazing. How many nights did I truly beg God for days like today? For days of normalcy and life beyond the scope
Gavins next laser ablation is scheduled for October 14th with a day of pre op scans, labs and appointments. This is the week of MEA break which will be nice for him and me as
Gavin did great today. He is getting older since this all began, which of course I knew. But he is more mature and handles things in a different manner now. He is not such
We got home yesterday from an amazing trip to the North Shore. The kids had so much fun. We swam a lot, played ping pong, relaxed, and went to a few bonfires. Gavin's favor
Just had to share some good news!!! Yesterday, I got the news from insurance about vision therapy. They will fully cover the first month, and after that they will cover 80%!
Gavin has a cold that has lasted almost a week. Started with fever and headache, then sore throat, runny nose, stuffy nose, more headaches, and now cough. Okay let's just ge