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Help ensure no one has to face life’s most difficult journeys alone by honoring Gavin with a donation to help CaringBridge reach our $1 million goal!

My Story

Welcome to Gavin's caringbridge site!  Gavin was diagnosed with a rare brain tumor in April 2012 when he was 5 years old.  His treatment plan has been changed multiple times and has been on a clinical trial drug for over a year called Palbociclib. He is the only child in the country on it and it has shown to stop the growth of his tumor. Gavin nicknamed his tumor Joe Bully. Gavin's tumor was large and after 5 craniotomies, chemo, steroids and no real treatment - he was given a grim prognosis in January 2013.  We refused to believe he had gone through so much to just give up and fought hard to get the clinical trial drug from Pfizer.  His tumor is finally under control with the new drug, and he has minor side effects thus far.

On October 29, Gavin was the first person in the upper midwest to have a brain tumor laser procedure to ablate his tumor.  Also, he is the first in the country to have a mature teratoma treated this way.  The surgery used heat to kill about half of the tumor.  Gavin had another visualase treatment in February and we will repeat until the Bully has been defeated.  His clinical course is unique in many ways, and has been unpredictable.  He is full of life and humor and loves making others smile.  This journey has been long but we have hope for some day without Joe Bully!

If you would like to donate in support of Gavin you can do so at Wells Fargo under the account "Gavin Pierson Donation Account".  Thank you for following Gav's journey.

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Nicole Pierson posted a new journal entry, "Tired boy!".

Gavin has been very active the past few days which also has resulted in him being pretty tired!  I've also been very tired and I'm not going through treatment so I think ... Read more

Rebecca Reid signed Gavin's Guestbook.

Piersons....you are all so strong.  Wishing and praying for the BEST NIGHT SLEEP EVER!!!!!  Lots of good dreams and plenty of rest for all five of you!   Read more

Nicole Pierson posted a new journal entry, "Eye appointment".

Gavin has an eye checkup tomorrow with ophthalmology.  His left eye has really been bothering him for awhile.  It burns and itches often especially when he's tired. ... Read more

Aimee(Jackson) Streif signed Gavin's Guestbook.

So excited to see the show. Just think your family is going to inspire millions.  Read more

Nicole Pierson posted a new journal entry, "Home!".

We are home from Hollywood.  I can't share much about the trip- especially the parts that involve the show.  I will say that the kids had a blast and it was amazing!!! I ... Read more

Nicole Pierson added a new photo.

Nicole Pierson added a new photo.

Nicole Pierson added a new photo.

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