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I started this journal when our son, Gavin, was hospitalized as an infant... and I'm still writing over 2 years later. Along the way it's become a baby book, a life preserver and a therapy tool. Every day brings another challenge, another milestone, another miracle.
Follow us on the road to progress, acceptance and healing.
Welcome to our daily journey...
I started writing this journal on January 26, 2008 as I sat in a tiny hospital room next to our son's crib. Gavin, who was four months old at the time, spent eight weeks hospitalized for RSV and Botulism. He is our first son and, unfortunately, this was not his first long hospital stay. His first month on this Earth was spent in the NICU. Although he was born at 37 weeks, he acted like a preemie - he was hypotonic and couldn't suck. His first year was challenging and overwhelming with feeding tubes, oxygen therapy, early intervention and struggling to keep hearing aids in his little ears. He was born with permanent hearing loss in both ears. Before he turned one, my husband and I took him to the St. Katharine Drexel Shrine... and not long after, his hearing was restored. Those little hearing aids sit on a shelf now. Gavin was born on September 29, 2007. Six days before his first birthday, he was diagnosed with Cerebral Palsy. He has defied medical predictions... inspired thousands... and has overcome many obstacles. Every visit to this website, to us, is another prayer or positive thought for his healing. He is our little superhero. When Gavin was six months old, we found out we were expecting again! Brian joined our family on December 16, 2008. It was quite an experience having a baby that they let me keep in my hospital room! Brian is such a joy - and a great little brother to Gavin. He has inspired a lot of physical progress in his big brother! We think he's Gavin's best therapist and are relieved he doesn't charge us for his services.
Most recently, we lost our first daughter. After 5 1/2 months of a blissful pregnancy, our little girl ~Darcy Claire~ was born still on May 10, 2010.
The road has not been easy. Many people ask why I write every day - why I write such personal, intimate details from my life. My only answer is this: I have to. I write to make sense of it all. I write to work things out in my head - and my heart. I don't write for validation. I don't write for affirmation.
I write because I have to.
And I'm glad to take you along on my journey.
Thank you for reading our story. And thank you for caring about our little family.
From January 26, 2008 to May 31, 2011, CaringBridge has been our home. The CaringBridge family have been so good to me - even featuring our story on their home page! I am so grateful to them for their hospitality. This journal has been a lifesaver for me in so many ways.
Now we have a new home. If you remember my name, you'll remember the address! Click or copy and paste the address below: