Gavin’s Story

Site created on September 18, 2012

Hi everyone. My name is Gavin Payne Hoime. I was born on September 7th via c-section. I was a big boy weighing in at 10lbs 1.5oz and was very long at 21 inches. I was excited to meet my mommy, daddy, and my sister Kayden. I spent a few days in the hospital with mommy and then went home Monday with my family here in Grand Forks. I was a happy healthy baby boy. 

I enjoyed my first few days home with my family before I started to feel sick and not want to eat. By Thursday, I was running a fever and not eating well. I went to see the doctor and he said I needed to go into the hospital to get some antibiotics. On Friday morning, I started to have some seizures and I stopped breathing. Due to this I was int-abated and sent to the Fargo NICU via helicopter. While there I suffered more seizures before getting medicine to help me calm down. During thr seizures I would stop breathing. I had to keep my vent going until I got the seizures under control. Once the seizures were under control I was able to remove my breathing tube on Sunday afternoon. I was happy. Mommy and Daddy then got the scary news that I suffered some serious brain damage and that I now had a long road to travel. I am working hard to heal and try to find out how I got sick.
Right now I am still getting some help to breath, trying some feedings with a tube, and trying to keep my seizures under control in order to heal. I am making some more baby like movements and sounds, but I am really sleepy most of the day. I struggle to breath when I am awake and when my nurses care for me. I like to keep my eyes closed, but they work just fine. I now have an Occupational Therapist helping try to gain strength and get my motor skills back. Now I just keep working on things and see if my brain will heal.

Newest Update

Hip Fix

Journal entry by Jennifer Hoime —

Gavin had to have his hip plates and screws removed due to bone shape shifting. The plates were causing pain and a swollen mass near his hip joints. Surgery was on Tuesday and everything went smoothly. This was a great relief and a surprise. He was able to come home the same evening. He is healing now and in the next 6 weeks he should be great.
Summer school went well and he is now on break until he starts again. He will have a new teacher but be in the same program he was in for kindergarten. 
He has a little cough but we are keeping an eye on how it develops. For now, he is going to enjoy a few days at the lake with his family. Have an amazing day everyone. 
Read More of the journal titled "Hip Fix"
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