×

CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Garrett with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

Garrett’s Story

Hi!I am Garrett and this is my sister Peighton.  Thank you for visiting our site!  Please read our story!I was born with Spina Bifida, have a VP shunt and reflux.  I am paralyzed from the waist down. My legs don't work too well, so I use a wheelchair to get around! Garrett has Spina Bifida, a VP shunt and Arnold Chiari Malformation. His medical history is very complex to say the least! He has had 67 surgeries and procedures. His zest for life, humor and smile draw people to him! Garrett loves swimming, playing in the sand, sled hockey, downhill skiing, playing Xbox, listening to music, watching Glee, Family Guy and any type of Ghost Adventure shows!  He also like hanging with his friends.Peighton loves listening to music, watching American Idol, MN Twins, MN Vikings, Glee and pretty much ALL the shows on ABC Family!  She also likes hanging out with her friends. They have a black Mini Schnauzer named Sophie and a white Mini Schnauzer named Daffy that they both adore!  Both are very smart, loving, compassionate, funny and beautiful kids! God is good!PLEASE remember to sign their guestbook!

Latest Journal Update

Untitled

We have completed two weeks of school! Overall things are going pretty well.


Friday morning we did get a bump in the road. I was helping Garrett get into the shower, when I noticed his J tube was hanging out about 9 inches. Both of us tried very hard not to panic, but this has never happened. We know this is a relatively common thing to happen, but it's never happened to us.


We tried pushing it in but that caused pain. So we put tape on it to secure it in place and headed to the ER. We were there for several hours but by the time he left he had a procedure in interventional radiology where they put in a new J-tube with a Mic key button.


The change in temperature has been difficult for Peighton. Her fibromyalgia is flaring up pretty bad. We are going to see the doctor again and hope we can tweak her medicines so that she is not so tired and hoping we can get a better handle on her joint and muscle pain.


Thanks for checking in on us!
heart
22 people hearted this

Comments

2 Comments

teri nordby
By teri nordby
Perhaps a massage would help Peighton. I know some sufferers of fibromyalgia find relief from that. Blessings to you all.
Muriel Anderson
By Muriel Anderson
Hi Adair,
I have been monitoring your site on Garrett and Peighton for several years and praying for all of you consistantly. I had bad fibromyalgia for several years and was told by the medical doctors to just live with the pain. Finally with my daughters recommendation, I tried homopathic medicine and in a few months was free of pain. That was over 15 years ago and am still free of pain. Have you tried acupuncture for Peighton? Our family has had great success with acupuncture too. Just a suggestion, but knowing homopathic medicine can cure fibromyalgia pain, I had to write and tell you.