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Garrett’s Story

Hi!I am Garrett and this is my sister Peighton.  Thank you for visiting our site!  Please read our story!I was born with Spina Bifida, have a VP shunt and reflux.  I am paralyzed from the waist down. My legs don't work too well, so I use a wheelchair to get around! Garrett has Spina Bifida, a VP shunt and Arnold Chiari Malformation. His medical history is very complex to say the least! He has had 76 surgeries and procedures that have required anesthesia. His zest for life, humor and smile draw people to him! Garrett loves swimming, sled hockey, downhill skiing, playing Xbox, listening to music, watching Family Guy and any type of Ghost Adventure shows!  He also like hanging with his friends.Peighton loves listening to music, watching Amazing Race, Survivor , MN Twins, MN Vikings, and pretty much ALL the shows on ABC Family!  She also likes hanging out with her friends. They have a black Mini Schnauzer named Sophie and a white Mini Schnauzer named Daffy that they both adore!  Both are very smart, loving, compassionate, funny and beautiful kids! God is good!PLEASE remember to sign their guestbook!

Latest Journal Update

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This summer has been filled with highs and lows. Garrett is still on bedrest and restricted from sitting upright. This is getting terribly old for him. He states, this not living. I have to agree. We have been either getting up every 2-3 hours or having him set his alarm every 3 hours to rotate positions. Tonight he will sit up for 2+ hours so he can attend our annual awards banquet. He really needs this. It is very depressing laying in bed or on the couch. Eating laying down is no fun. We really need prayers to get these sores to heal so he can attend school starting 9/8. He has not attended school on a regular or consist basis since 5th grade.


A month ago we discovered that Peighton had developed a DVT (deep vein thrombosis-a blood clot). It is from her left wrist ALL the way to her armpit. Had we waited much longer, the clot could have caused a pulmonary embolism and she could have died. She now must give herself twice daily shots in her stomach. This will continue for a minimum of 3 months. On Wednesday she has another Doppler ultrasound of her entire arm. We are praying that the clot is broken down. If not, Dr Anim will direct and instruct us. She is no longer able to take the medicines she needs for pain relief and has had to discontinue other medications as they can contribute to the formation of new blood clots.


The summer has slipped by! We are trying to find some happiness amongst all the medical complications with both kids.


Peighton will start her senior year of school!
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Comments

15 Comments

Lisa Erickson
By
Both children are lucky to have you as their mother Adair. You catch so much of what doctors miss. I am praying that your rough road will finally end. Your family has suffered more than seems tolerable.
Edward Biniek
By Ed Biniek
Hi. My name is Ed Biniek. I am contacting you with nothing to gain, just hopeful that my story can in some way help your kids. I am a 42 year old male with ataxia. I use a walker for balance. I work with Melissa Seitz. She always talks about Hyperbaric Oxygen Therapy (HBOT). I finally read a book she gave me by Dr. Paul Harch; Oxygen Revolution. Ataxia has no cure or treatment. After 80 HBOT treatments, I improved a lot and that is why I am contacting you. My improvement is not night and day difference but it changed my quality of life. Better balance, sleep, vision, hearing, feeling and touch, speech, writing, mood, bladder and bowel function, no throat seizures when drinking and eating, no muscle cramps , more energy and little to no anxiety in a crowd. If HBOT helped me it might help your children. Not many doctors know about it in this area because we do not have a chamber in Fargo/Moorhead, but we do have one in Hennepin, Rochester and Bemidji. I want to offer this book to you. I want you to research hyperbaric for wound care and blood clots. Please contact me at edwardbiniek@gmail.com and I will mail book.
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1 person hearted this
pat scholar
By
I am so sorry to hear this------I was just wondering how both kids were doing this summer! :-(
Kathy and Doug Ellingson
By Kathy Ellingson
Well....the kids are holding their own and for this I'm Thankful and grateful!!! I pray that those sores heal so he can start school and start "living"! I also will pray that Peighton can break up those clots so she can settle into a wonderful senior year making lots of memories!!!!
LaVerne Seefeld
By LaVerne Seefeld
First of all, prayers for Garrett and you his caregivers. How sad to have to spend his youth in this position. Prayers that he will be able to attend school soon again.
Congratulations to Peighton entering her senior year of high school. And prayers for her and the treatments she must continue to be able to do her activities and so forth.
God bless all of you. Your crosses are many.
yashita bivins
By yashita bivins
Praying things get better for them both...
Thomas Barry
By Tom Barry
Garrett & Peighton ! Sending a Giant Tidal Wave of Love, Hope, Prayers & Healing Wishes to both of you !
Winnie Bayon
By Winnie Bayon
Sending prayer for healing and patience for all of you during these trying times. God bless you all for your courage.
Beth Pennings
By Beth Pennings
It's unimaginable what your family has been - and continues to go through these past several years. I pray for you often, especially when I walk by your house. I'm just so sorry that this is your life. It stinks. Will be praying that Peighton's clot is breaking down. What an ordeal.
Beth Schaible
By Beth S.
Praying for God to give you all strength and mercies for each new day! Any chance Garrett can stand instead of lay down?