I am Garrett and this is my sister Peighton. Thank you for visiting our site! Please read our story!
I was born with Spina Bifida, have a VP shunt and reflux. I am paralyzed from the waist down. My legs don't work too well, so I use a wheelchair to get around!
Peighton has Asthma, Lymphocytic Colitis, Reflux, Pancreatic Enzyme Insuffiency and Axenfeld-Rieger's Syndrome. Peighton's Pancreas only produces 1 of the 4 enzymes needed for digestion. She also has Asthma and Lymphocytic Colitis. She takes 16 pills daily in order for her body to digest and absorb food and to help manage her Asthma. She has Axenfeld-Riegers Syndrome-leaving her with a 50% chance of developing Glaucoma. She plays volleyball. She does not let her medical conditions stop her from participating in sports--or life!
Garrett has Spina Bifida, a VP shunt and Arnold Chiari Malformation. His medical history is very complex to say the least! He has had 37 surgeries and procedures. His zest for life, humor and smile draw people to him!
Garrett loves swimming, playing in the sand, sled hockey, downhill skiing, listening to music, and playing with his friends.
Peighton loves listening to music, watching American Idol, MN Twins Baseball, playing volleyball and hanging out with her friends.
They have a black Mini Schnauzer named Sophie and a white Mini Schnauzer named Daffy that they both adore!
Both are very smart, loving, compassionate, funny and beautiful kids!
Dr. Hou came back and looked at Garrett around 5:30. She wants to keep monitoring his Ileus and partial bowel obstruction rather than send him down to surgery. She did a bowel regime on him and got some results. There was a large amount of stool right by his ACE stoma. She is hoping that by breaking this free, the small intestinal blockage will have a place to travel. Right now the only place things are able to move is UP through the NG tube which as you can imagine is pretty darn gross.
She has ordered serial xrays of his stomach and intestinal tract to keep a close eye on things. She is going to start some Reglan to try and help wake up the gut. She also ordered TPN (nutrition through his other PiCC) that will be starting at 8:00 pm.
We are hoping for a better night and that his intestinal issues start resolving soon.
Thanks for all you continued prayers. We miss Peighton and Bill something fierce. It is so tough being separated.