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Garrett’s Story

Hi!I am Garrett and this is my sister Peighton.  Thank you for visiting our site!  Please read our story!I was born with Spina Bifida, have a VP shunt and reflux.  I am paralyzed from the waist down. My legs don't work too well, so I use a wheelchair to get around! Garrett has Spina Bifida, a VP shunt and Arnold Chiari Malformation. His medical history is very complex to say the least! He has had 73 surgeries and procedures that have required anesthesia. His zest for life, humor and smile draw people to him! Garrett loves swimming, sled hockey, downhill skiing, playing Xbox, listening to music, watching Family Guy and any type of Ghost Adventure shows!  He also like hanging with his friends.Peighton loves listening to music, watching Amazing Race, Survivor , MN Twins, MN Vikings, and pretty much ALL the shows on ABC Family!  She also likes hanging out with her friends. They have a black Mini Schnauzer named Sophie and a white Mini Schnauzer named Daffy that they both adore!  Both are very smart, loving, compassionate, funny and beautiful kids! God is good!PLEASE remember to sign their guestbook!

Latest Journal Update

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We will do another chest X-ray tomorrow to make sure additional fluid has not accumulated in Garrett's lung. He continues to cough a lot and has difficulty breathing. If there is too much fluid, Dr Kim has already specified that we put the chest tube back in and leave it in for at least a couple of days and start back on Vancomycin. He had the chest tube in for 10 days at Gillette with no issues. Bottom line is that The chest tube shouldn't have come out after just 1 day. It's hard when Garrett's specialists are NOT contacted prior to doing things. It's hard when certain Intensivists have egos and make rash decisions. We hope that if we have to place a chest tube, the fluid will be gone in 2-3 days. His body just needs to start absorbing the CSF....








Now we have a mess on our hands and he will more than likely have to go thru the pain of getting another chest tube placed.








The back wound looks really really good and we hope to keep it that way!








The lab and urine tests were done this afternoon and were sent away.








Now we work on eating and slowly removing the TPN while we wait for the lung to clear.
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Comments

9 Comments

Jane Melander
By Jane Melander
Praying that Garrett is on the road to recovery and he is doing so much better reallt soon. Sending prayers from Moorhead.
Kathy and Doug Ellingson
By Kathy Ellingson
Keep it up Garrett...hopefully you will feel better very soon!!!
Jennifer Green
By Jennifer Green
Praying for the lung to clear ASAP, for the back wound to continue to heal, and for progress toward eating and removing the TPN.
Jennifer Green
C.O.L.E.’s Prayer Team 
www.colesfoundation.org
Deb Lindemann
By Deb
Just have the "doctors" read your journal! Hang in there.
Jeff Reed
By Jeff Reed Family
Great to hear the back is coming along well, try to take the highs over the not so highs and for sure lows. With technology as it is communication should be the last thing that makes this journey any more difficult. I know I have said this before but I believe that you know Garrett and his body and how it reacts, works, and what it can take better than any of the professionals working to improve Garrett's health. You're in this for duration so stay after it. We miss you all back here. Again, if there is anything we can help you with please just ask.
Jeff, Lavina and Mason
Mary Stein
By Mary S.
Praying for a Christmas miracle of healing for Garrett!
Carolyn Kryzsko
By Carolyn Kryzsko
I think of you often and you are always in my prayers. God, please heal this boy! Please
LaVerne Seefeld
By LaVerne Seefeld
Oh gosh, so sad that some of those "specialists" or so called experts don't want to listen to wisdom and realize they are dealing with the life and suffering of a young man who has experienced way too much already in his life. May this work out for the best again, and my prayers continue for Garrett, the doctors, and especially you his family. God be with you.
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Mary Marvin-Charlton
By Mary Charlton
Garrett continues to be in my thoughts and prayers throughout each day. My wish for your family is moments that are pain free and peaceful.