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Garrett’s Story

Hi!I am Garrett and this is my sister Peighton.  Thank you for visiting our site!  Please read our story!I was born with Spina Bifida, have a VP shunt and reflux.  I am paralyzed from the waist down. My legs don't work too well, so I use a wheelchair to get around! Garrett has Spina Bifida, a VP shunt and Arnold Chiari Malformation. His medical history is very complex to say the least! He has had 76 surgeries and procedures that have required anesthesia. His zest for life, humor and smile draw people to him! Garrett loves swimming, sled hockey, downhill skiing, playing Xbox, listening to music, watching Family Guy and any type of Ghost Adventure shows!  He also like hanging with his friends.Peighton loves listening to music, watching Amazing Race, Survivor , MN Twins, MN Vikings, and pretty much ALL the shows on ABC Family!  She also likes hanging out with her friends. They have a black Mini Schnauzer named Sophie and a white Mini Schnauzer named Daffy that they both adore!  Both are very smart, loving, compassionate, funny and beautiful kids! God is good!PLEASE remember to sign their guestbook!

Latest Journal Update

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Good things have occurred these past few weeks and a few not so good...


Most of Peighton's test results have come back within the normal range. Good news except that her blood pressure remains elevated and she feels gross most of the time. Might be her fibromyalgia... Might not. She will see the peds nephrology doctor again in August. The need to continue making sure her kidneys remain healthy as high blood pressure can damage them. Hypertension runs in our family (I take 2 different meds for it and so did my mom). They will keep reassessing her to see if meds need to be started.


Onto Garrett--he WAS doing much better. He was now able to transfer in and out of bed, couch, floor! Now back to square one as he has developed pressure sores from shearing and sitting. He is now restricted to his bed or the couch for most of each day in and attempt to get these pressure sores healed and closed without being placed in the hospital. As you can imagine this is a major setback for his emotions. He was learning to become independent again and being able to be active and enjoying his life.


He was becoming very physically fit again and we are still trying to reserve some sitting up time so he can be up riding his bike to stay in shape. This is basically are the only time he gets to sit up other than showering and going to the bathroom.


Please pray that these pressure sores heal and close so that he can get back into a fun summer routine like every other teenager.


He is now having to try to work on his schoolwork laying on his back or side. It makes getting schoolwork done even more difficult during the summer months.



Have a happy and safe 4th of July!
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Comments

10 Comments

LaVerne Seefeld
By LaVerne Seefeld
God bless all of you, and celebrate our fabulous Independence Day in safety.
So good to hear that Garrett has made such progress. Hopefully this is a small setback. Prayers continue for Garret and Peighton as well as mom and dad.
bruce legacie
By Bruce Legacie
so sorry to hear of the set backs... prayers sent... also sent for your daughter for blood pressure to go down to normal...
Gretchen Noraker
By Gretchen Noraker
Always thinking and praying for your family. Sincerely, Gretchen
Dean & Shellie Lackey
By Nurse Shellie
Sorry to hear Garret us having issues. We continue to pray for him. Do you have Dragon Naturally Speaking for his computer it will be much easier for him to do lots of his homework. Sending hugs and prayers for all of your family.
Alanna Fink
By Alanna Fink
It is sad about the pressure sores. However, Adair you are ever the optimist and IT WILL get better, this is just a little hill. Have a great 4th Grommesh Family!!!
Holly Inniger
By
Prayers of healing for both Peighton and Garrett!
Thomas Barry
By Tom Barry
Peighton & Garrett ! Sending a Giant Wave of Healing Thoughts & Prayers to both of you today ! I Pray that you are able to join us for the Adaptive Kayaking Day in August !
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1 person hearted this
Jeff Reed
By
He can always pretend he is an astronaut as he lays on his back doing it but he will need the space pen that writes upside down. Prayers will continue.
Jeff, Lavina and Mason
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Vicki Schmidt
By Vicki Schmidt
I pray for all of you very often and when I drive by your house I pray for special blessings on your home and family to continue to heal and have good times together in love.