My prayers are for my son to not suffer--I will continue to search for the answers of whatever disease Gabe has and what Hunter had.

My Story

This site is being created in honor of my 2 year old son who is battling a rare unknown disease.

Before I begin, let me start by adding that Gabe's older brother Hunter passed away at the tender age of 25 months. My boys have never met on this earth. Visit Hunter's memorial at www.hunter-wallace.virtual-memorials.com

Journal

Thursday, July 2, 2009 10:33 PM, CDT


JUST SAY "i'M SORRY"
You don't know how I feel
Please don't tell me that you do.
There's just one way to know--have you lost a child too?
"You'll have another child!"--must I hear this each day?
Can I get another mother, too, if mine should pass away?
Don't say it was "God's will"--
That's not the God I know,
Would God on purpose break my heart,
Then watch as my tears flow?
"Aren't you better yet?"
Is that what I heard you say?
NO! A part of my heart aches--
I'll always feel some pain.
You think that silence is kind,
But it hurts me even more.
I want to talk about my child
Who has gone through death's door.
Don't say these things to me,
Although you do mean well.
They do not take the pain away;
I must go through this hell.
I will be better--slow but sure--
And it helps to have you near.
But a simple "I'm sorry you lost your child"
is all I need to hear.

~Author Unknown

 

I had to share this poem--I am sure every parent that has lost a child hears a little of this from a well-meaning person before. I miss Hunter so much. As our trip to Florida gets closer I can't help but long for my son I lost--how I wish he could physically be a part of this wonderful vacation.


Now for Gabe--He is doing well. I did get a call from GI regarding the stool studies and the cultures came back negative. But the lab didn't do the test for C.diff (and the paper work specifically said stool culture AND C.diff studies) So we will be doing ANOTHER stool collection to test once again for C.diff, meanwhile Gabriel will be started on the med Flagyl in preperation for a positive C.diff study.

We have almost everything ready for our trip to Florida. We leave early Wednesday morning. I am hoping to get to really spoil my son (and of course my husband..lol) But I don't want to overextend ourselves. I have to be able to budget. LOL 

Not much else has been going on. Thank you for checking in on Gabriel.

Oh... Gabe got his 3 year old pictures taken today. He took some amazingly beautiful pictures. The guy actually put Gabe in a white wicker chair..so if you don't really know Gabe's developmental history you really can't tell he is so delayed. He looked like such a big boy. I don't know how I will be able to share the picture with everyone. I am computer illiterate...lol  I will see if I can find a way. The pictures will be ready for pickup in 2 weeks. Robert's favorite pose was of Gabe actually holding up 3 fingers--it was unexpected, but so cute and looked purposeful. Way cute!!

 
 
 

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GOD BLESS EVERYONE!!

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HOSPITAL INFORMATION

Bronson Methodist Hospital
601 John Street
Kalamazoo, MI 49007
United States
269.341.7654