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My Story

Gabriella Sharon Rocco

March 26, 2006 - May 28, 2008

Gabby's CaringBridge site was created to keep you up to date on her progess, and continues now as part of her legacy. .

The messages of encouragement and support are invaluable to us. We thank everyone of you who has prayed for and continues to pray for our family's healing. Thank you- Joan & Pete

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Gabriella was diagnosed with an extremely rare congenital disease called Neurocutaneous Melanosis. There is little known about it and there is no known cure. The disease attacks the central nervous system (brain and spinal cord) and has a very poor prognosis once neurological symptoms begin.

In November of 2007 Gabby underwent two shunt surgerys for hydrocephalus, which is a major neurological symptom of this disease that doctors were unaware she had. In February of this year she was diagnosed with NCM and underwent an extensive surgery that included a shunt revision, external drain for her subdural hematoma (caused by the shunt failure), and a procedure to drain the tumor that was compressing her spine.

The surgery revealed that the disease had consumed her entire spinal cord which was causeing her to have radiating pain throughout her body, as well as a regression in her ability to walk. In addition, she experienced neuropathic pain and seizures that required different medications to control.

In her last month she was quadriplegic, but her smile shined through the frustation. In her last days she was blind, mute, quadriplegic, and in her final hours unconscience.

Thank you to HOSPICE of Saratoga for your support so Gabriella could be home and surrounded by her family, friends, and all things familiar. Gabriella passed on Wednesday May 28th in her own bed during prayers. We rejoice in her victory!

 

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Joan Rocco posted a new journal entry.

The bushes clustered along the knoll in the backyard are about to burst open with brilliant white flowers.  Enduring the harsh, prolonged winter and the cold, ... Read more

Joan Rocco posted a new journal entry.

The bushes clustered along the knoll in the backyard are about to burst open with brilliant white flowers.  Enduring the harsh, prolonged winter and the cold, ... Read more

Joan Rocco posted a new journal entry.

Five is a milestone birthday.  It’s an age of natural transition, not awkward or forced as culture sets.  Emerging from the trenches of early childhood, five completes ... Read more

Joan Rocco posted a new journal entry.

We are excited to announce that the recording artist Divine Order has selected our Gabby Rocco Let It Shine Foundation to receive a portion of the proceeds from their ... Read more

Joan Rocco posted a new journal entry.

MilestoneTwo YearsTwo MonthsTwo DaysIn Hevean as long as here to holdFour yearsFour monthsFour daysNothing can stop her purposeOne lifeOne ... Read more

Joan Rocco posted a new journal entry.

On this day in 2008 Gabriella entered eternal glory as Jesus welcomed her home.   In her two years, two months, and two days here she shined with love, hope, and life.  ... Read more

Joan Rocco posted a new journal entry.

Friday, March 26, would have been Gabriella’s 4th birthday. It challenges our minds realizing we have celebrated two birthdays with her here eating cake, and now two ... Read more

Joan Rocco posted a new journal entry.

Gabriella is remembered in a recently published book Meadow Flowers by Sandra E. McBride.  This an excerpt from page 101:On The Loss of a Child"The bud we tend with ... Read more

Joan Rocco posted a new journal entry.

We had just two Christmastimes with Gabriella.  Two trips to the tree lot, two pictures taken with Santa, two tuck-ins Christmas Eve, and just two merry Christmas ... Read more

Joan Rocco posted a new journal entry.

"THERE IS A TIME FOR EVERYTHING, AND A SEASON FOR EVERY ACTIVITY UNDER THE SUN..." -Ecclesiastes 3:1Fall used to be my most favorite time of the year.  I seemed ... Read more

Joan Rocco posted a new journal entry.

Sharing Samantha's StoryWe recently returned from a Maine vacation.  When I brought Samantha into the house she quickly ascended the stairs.  She was anxious as she ... Read more

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