Gabriella Sharon Rocco
March 26, 2006 - May 28, 2008
Gabby's CaringBridge site was created to keep you up to date on her progess, and continues now as part of her legacy. .
The messages of encouragement and support are invaluable to us. We thank everyone of you who has prayed for and continues to pray for our family's healing. Thank you- Joan & Pete
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Gabriella was diagnosed with an extremely rare congenital disease called Neurocutaneous Melanosis. There is little known about it and there is no known cure. The disease attacks the central nervous system (brain and spinal cord) and has a very poor prognosis once neurological symptoms begin.
In November of 2007 Gabby underwent two shunt surgerys for hydrocephalus, which is a major neurological symptom of this disease that doctors were unaware she had. In February of this year she was diagnosed with NCM and underwent an extensive surgery that included a shunt revision, external drain for her subdural hematoma (caused by the shunt failure), and a procedure to drain the tumor that was compressing her spine.
The surgery revealed that the disease had consumed her entire spinal cord which was causeing her to have radiating pain throughout her body, as well as a regression in her ability to walk. In addition, she experienced neuropathic pain and seizures that required different medications to control.
In her last month she was quadriplegic, but her smile shined through the frustation. In her last days she was blind, mute, quadriplegic, and in her final hours unconscience.
Thank you to HOSPICE of Saratoga for your support so Gabriella could be home and surrounded by her family, friends, and all things familiar. Gabriella passed on Wednesday May 28th in her own bed during prayers. We rejoice in her victory!