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My Story

PLEASE HELP US RAISE MONEY FOR New Treatments at Memorial Sloan Kettering



People ask what can we do....

 Become a monthly band of parents donor at

Participate in our second annual Band of Parents golf tournament at Chantilly National on 4/30/2012



After an appendicitis attack in June 05 the surgeon saw a small cyst on the back of his pelvic wall and on the spine. He thought it was congenital and ordered a cat scan a few weeks later. On Aug. 17th we discovered that we were in the awful nightmare of neuroblastoma diagnosis. He never had a symptom. He was stage 4 with packed marrow and extensive MIBG involvement. We packed and left for NYcity and receive all treatment at Sloan-Kettering Cancer Center.

Nick has received

5 induction chemo rounds using cytoxin//doxyrubicin/adromyacin,vincristine cisplatin, etopocide

round 6 was vincristine, cytoxin and topetecan

Minimal Residual marrow involvement, 7th round with Irinotecan/Temador, iv and oral.

After 3rd round had 11 hour surgery complete resection. MIBG follow up was totally CLEAR!



Started 3f8 antibodies April 10- one round finished clearing marrow, announced on May 2, 2006 created hama

Hama gone 3 weeks later,

Second round. completed then got shingles. 5 days in hospital.

Radiation 14 doses/7 days, July 06

Switch to double dose antibodies one week instead of two/ per protocol change at Sloan, Sept. 06 Continued NED until scans in April 07 several spots on bone.

One year on Irino/temador always slow improvement. Bowel obstruction and surgery July 08, continued for more irino/temador until Sept. 08. Tried to get ABT751 off study because he didn't have progression and was as close to NED as possible with only faint uptake on a couple of ribs. Decided to do 3 rounds of Temador/celebrex/thalidomid... great quality of life, enjoyed senior year of high school until scans in Jan. reveal massive relapse with multiple lesions on bony areas and two bone marrow aspirates positive. Currently recovering from a mid dose round of cyclo/topo/vincristine.

After one medium dose and one low dose round aspirates clear but bony lesions persistent.  Opted for clinical trial at CHOP in Philadelphia using ultratrace mibg therapy.  Tough, tough therapy on Nick.  BUT outcome..... no marrow disease and all cancer gone but one faint spot on left hip.  Started ABT751 in July 09.  Graduated high school, started college.  Bowel obstruction again, rushed home from college MIRACLE cleared with no surgery in two days. 


Caryn Franca posted a new journal entry.

For those of you who can't find the follow link, try to open it on your laptop or desk top.  When I open it down on the bottom of my computer a little word that says ... Read more

Kathy Brockman signed Nick's Guestbook.

Thanks for the information to follow the blog.  I went back and my "follow" was upper left, but I got it.  I look forward to future posts. Read more

Cindy Harris signed Nick's Guestbook.

I'm so glad you're writing and opening your heart for us to experience your journey again, Caryn.  I think of you all often.  Read more

Bud West signed Nick's Guestbook.

Thank you Caryn! I have been reading and learning a lot more about your journey.In Christ's love,Bud Read more

coleen parrish signed Nick's Guestbook.

Reading it & Loving it!! Always loved reading your cb posts, you & your family have been missed. Can't wait for the book!! Love, Coleen Read more

Bonnie Hobbs signed Nick's Guestbook.

Wow, both hopeful and heartbreaking. And you're a really good writer, Caryn. Hang in there; you're doing a terrific job! Read more

Caryn Franca posted a new journal entry, "new blog entry".

Reminder to follow the journey of the birth of my book on  www.lessonsfrommysonstattoo.wordpress.comscroll to bottom right side and click "follow" to get email updates ... Read more

Jeff Harper signed Nick's Guestbook.

Good for you, Caryn, for sharing the love, lessons, and heartache with the world.  A painful process for you. Pace yourself.  Joyce & I send our love to you and Jim. Read more

Caryn Franca posted a new journal entry, "typo:".

The blog is www.lessonsfrommysonstattoo.wordpress.com.Left an O off of tattoo... editors will have a field day with me! Read more

Bud West signed Nick's Guestbook.

Thank you for teaching us how to Live Like Nick Did and may the power of the holy spirit continue to guide and sustain you!In Christ's love,Bud Read more

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