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AFP was 5 which is perfect :)
Dr. Rangaswami said he just came back from Oslo Norway where he was at a liver tumor conference. There are specialists there from all over the world. He discussed Finns tumor and discussed 3 other similar cases (I didn't know there were any others like his). All 3 had a rare gene mutation called APC and are at high risk for developing HCC (the much more risky adult form of liver cancer) later in life. It was strongly recommended for Finn to be genetically tested (insurance says no so its $5,000 for us) and for Finn to be closely monitored for the rest of his life.... (Rather than just for 3 years like the other Helatoblastoma cases). 😔
We need to figure it out and get him tested and pray for him to be negative for APC mutation.
On a more positive note, we discovered yet another new amazing playground up here :-). It is made with special needs children in mind, so that everyone can do everything! It's amazing! It's called Magical Bridge Playground. I'm sure it will be one of our regular pitstops from now on. 😊🌳🔆