National MPS Awareness Day MAY 15th wear your (dk) purple and support MPS "Dress for MPS"

My Story

Bryce has Sanfilippo Syndrome. MPS III A. There is not yet a cure but we hold HOPE.

The Journey of a thousand miles begins with one step...
 

Journal

Wednesday, July 1, 2009 6:49 AM, CDT


Tickets are now on sale for our fundraiser for Bryce. 
FIGHT FOR BRYCE COMEDY NIGHT
at POINT BREEZE RESTAURANT
(114 Point Breeze Rd .Webster MA)
on Saturday August 22nd
at 9 pm Ticket price is $15 per person
You may purchase tickets through Point Breeze by going to the restaurant or calling 508-943-0404 (cash, check or credit)
 
Questions call Chris Adams at 774-280-6222 The night is sponsored by Point Breeze and Comics for a Cure.
We will also have raffles through the performance.
Thank you for your support and hope to see you there.

God Bless
Mommy Koren to Bryce

-----------------------------------------

Another Rainy Day. Bryce did well getting his last vaccination yesterday. He says many new words each day and says three to four word sentences here and there. He is stacking blocks once again and can run and play on his slide, landing on his feet with a smile. We hope that he continues to learn as he has been. THe last time we went for evaluations, last Sept, we were told that we should expect Bryce to plateau with his learning.... that has not yet seemed to happen. We hope that transplant has helped to hold the process of this disorder back as long as it can. Bryce is a sweet loving little boy who sure loves life and every day he is given. Even on the rainy days he wakes full of excitement. He looks out the window and announces to everyone "It's Raining." with a proud smile. If only we knew what he was really thinking, he certainly is thinking a lot. Well here's to another 10 days of lovely rain... with lots of smiles.

Hugs from Bryce and his Mommy Koren

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If you know someone who would like to make a donation directly to Bryce tell them to make donations to: Bryce Adams Trust Webster Five Cents Savings 343 Main St Oxford MA 01540

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E-MAIL AUTHOR

kaadams@charter.net

HOSPITAL INFORMATION

Duke Pediatric Bone Marrow Transplant Program
2400 Pratt St.
Suite 1400
Durham, NC 27710
United States